青少年特发性关节炎的生活：家长和医生的观点。
Living with Juvenile Idiopathic Arthritis: Parent and Physician Perspectives.
作者信息
Heath-Watson Shelly, Sule Sangeeta
机构信息
Silver Spring, Maryland, USA.
Department of Pediatrics, Pediatric Rheumatology, Johns Hopkins University, Baltimore, MD, USA.
出版信息
Rheumatol Ther. 2018 Jun;5(1):1-4. doi: 10.1007/s40744-018-0098-2. Epub 2018 Feb 26.
Abstract
This article, co-authored by a parent of a child with juvenile idiopathic arthritis (JIA) and his pediatric rheumatologist, discusses the parent's experience of having a child with JIA from diagnosis through living day-to-day with the disease.
摘要
本文由一位患有幼年特发性关节炎（JIA）患儿的家长及其儿科风湿病专家共同撰写，探讨了这位家长从孩子被诊断出患有JIA到与疾病一起生活的日常经历。
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本文引用的文献
1
The Contribution of Parent and Family Variables to the Well-Being of Youth With Arthritis.父母及家庭因素对患关节炎青少年幸福感的影响
J Fam Nurs. 2015 Nov;21(4):579-616. doi: 10.1177/1074840715601475. Epub 2015 Aug 29.
2
The functional and psychological outcomes of juvenile chronic arthritis in young adulthood.
Br J Rheumatol. 1994 Sep;33(9):876-81. doi: 10.1093/rheumatology/33.9.876.
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