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父母及家庭因素对患关节炎青少年幸福感的影响

The Contribution of Parent and Family Variables to the Well-Being of Youth With Arthritis.

作者信息

Knafl Kathleen, Leeman Jennifer, Havill Nancy L, Crandell Jamie L, Sandelowski Margarete

机构信息

University of North Carolina, Chapel Hill, USA

University of North Carolina, Chapel Hill, USA.

出版信息

J Fam Nurs. 2015 Nov;21(4):579-616. doi: 10.1177/1074840715601475. Epub 2015 Aug 29.

Abstract

Among developed countries, the reported prevalence of juvenile idiopathic arthritis (JIA) varies from 16 to 150 per 100,000. Previous reviews have identified risks faced by children with chronic conditions and indicate a relationship between parent/family characteristics and child adaptation. This analysis provides a mixed-methods synthesis of 29 research reports addressing the intersection of family life and JIA. Data were extracted using a structured template, and effect sizes were calculated for reported relationships between variables. Results were coded using a scheme that differentiated types of family factors. Meta-analysis revealed a moderately strong positive relationship between parent and child psychological functioning, and a medium negative relationship between family conflict and child psychosocial well-being, and parental depression and child physical functioning. Thematic analysis of qualitative results identified parenting challenges related to pain management and regimen demands. Results indicate that interventions to enhance parenting competence and family relationships may improve caregiver and patient outcomes.

摘要

在发达国家,报告的青少年特发性关节炎(JIA)患病率为每10万人16至150例。以往的综述已确定慢性病患儿面临的风险,并表明父母/家庭特征与儿童适应之间存在关联。本分析对29篇关于家庭生活与青少年特发性关节炎交叉领域的研究报告进行了混合方法综合分析。使用结构化模板提取数据,并计算变量之间报告关系的效应大小。结果采用区分家庭因素类型的方案进行编码。荟萃分析显示,父母与子女心理功能之间存在中度较强的正相关,家庭冲突与儿童心理社会幸福感、父母抑郁与儿童身体功能之间存在中度负相关。定性结果的主题分析确定了与疼痛管理和治疗方案要求相关的育儿挑战。结果表明,提高育儿能力和家庭关系的干预措施可能改善照顾者和患者的结局。

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