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发展性协调障碍儿童的健康相关生活质量:PedsQL 和 KIDSCREEN 工具的相关性及其与正常样本的比较。

Health-related quality of life in children with Developmental Coordination Disorder: Association between the PedsQL and KIDSCREEN instruments and comparison with their normative samples.

机构信息

College of Nursing and Health Innovation, University of Texas at Arlington, United States.

School of Social Work, University of Texas at Arlington, United States.

出版信息

Res Dev Disabil. 2018 Apr;75:32-39. doi: 10.1016/j.ridd.2018.02.009. Epub 2018 Feb 23.

Abstract

BACKGROUND AND AIMS

One of the major concerns for Developmental Coordination Disorder (DCD) are the mental and physical consequences of the condition, especially as they relate to quality of life factors. Here, we examined health-related quality of life (HRQOL) in children with DCD, determined the association between two standardized parent reports, and compared HRQOL of our sample with DCD with the normative sample of each assessment for typically developing (TD) children and a sample of children with chronic health conditions.

METHODS AND PROCEDURES

Parents of children with reported DCD with ages between 6 and 12 completed the PedsQL and KIDSCREEN instruments through an online survey. The PedsQL measures HRQOL in the Physical, Emotional, Social, Academic, and Psychosocial Functioning domains, while the KIDSCREEN assesses HRQOL in Physical and Psychological Well-Being, Autonomy & Parents, Peers & Social Support, and School Environment.

OUTCOMES AND RESULTS

Pearson's correlation analyses showed low to moderate correlations between dimensions of the assessments, with the exception of the KIDSCREEN Autonomy & Parents. T-test analyses showed that the group with DCD showed significantly lower scores than the normative samples on the PedsQL and KIDSCREEN, and the PedsQL scores were significantly lower than those of a sample of children experiencing chronic illness.

CONCLUSIONS AND IMPLICATIONS

Scores on both instruments state that DCD likely represents a serious problem for children, and add to the body of evidence supporting the notion that children with DCD have lower overall HRQOL. We urge professionals to address or refer these children to services that can help improve children's quality of life and prevent future health problems.

摘要

背景与目的

发育性协调障碍(DCD)的主要关注点之一是该病症的身心后果,尤其是与生活质量因素相关的后果。在这里,我们研究了 DCD 儿童的健康相关生活质量(HRQOL),确定了两种标准化家长报告之间的关联,并将我们的样本与 DCD 与每个评估的典型发育(TD)儿童的规范样本以及患有慢性健康状况的儿童样本进行了 HRQOL 比较。

方法和程序

年龄在 6 至 12 岁之间的 DCD 儿童的父母通过在线调查完成了 PedsQL 和 KIDSCREEN 量表。PedsQL 测量身体、情感、社会、学术和心理社会功能领域的 HRQOL,而 KIDSCREEN 则评估身体和心理幸福感、自主与父母、同伴与社会支持以及学校环境的 HRQOL。

结果和结论

Pearson 相关分析显示,评估的各个维度之间存在低至中度的相关性,但 KIDSCREEN 自主与父母除外。T 检验分析表明,与规范样本相比,DCD 组在 PedsQL 和 KIDSCREEN 上的得分明显较低,而 PedsQL 得分明显低于患有慢性疾病的儿童样本。

结论和影响

两种工具的分数表明 DCD 可能对儿童构成严重问题,并为支持 DCD 儿童总体 HRQOL 较低的观点提供了更多证据。我们敦促专业人员解决或转介这些儿童,以便他们可以获得有助于改善儿童生活质量并预防未来健康问题的服务。

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