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发展性协调障碍儿童的健康相关生活质量。

Health-related quality of life of children with Developmental Coordination Disorder.

机构信息

Department of Occupational Science & Occupational Therapy, University of British Columbia, Vancouver, Canada.

Graduate Programs in Rehabilitation Science, University of British Columbia, Vancouver, Canada; BC Children's Hospital Research Institute, Vancouver, Canada.

出版信息

Res Dev Disabil. 2019 Jan;84:85-95. doi: 10.1016/j.ridd.2018.05.012. Epub 2018 Jun 12.

Abstract

BACKGROUND

Although Developmental Coordination Disorder (DCD) is primarily a motor disorder, it can also impact emotional and psychosocial functioning of children with this condition. Evidence suggests that children with DCD experience lower quality of life than their peers, but few studies have explicitly examined the health-related quality of life (HRQOL) of these children.

AIMS

To: (1) describe HRQOL of children with DCD compared to typically-developing children; (2) compare HRQOL from the perspectives of children with DCD and their parents; and (3) explore predictors of HRQOL for children with DCD.

METHODS

Data from the KidScreen-52 and Strength and Difficulties Questionnaire were collected from 50 children with DCD [Mean(SD) age: 9.8 (1.2) years] and their parents and compared to normative data.

RESULTS

Children with DCD and their parents report significantly lower HRQOL compared to published norms. Caregivers have a significantly lower perception of their child's HRQOL than their child's self-report in many domains. Parents of children with DCD report that their children experience significantly more emotional and behavioral disturbances compared to norms. Poor motor function and attentional difficulties predict HRQOL.

CONCLUSION AND IMPLICATIONS

DCD appears to contribute to lower perceived HRQOL. Findings inform therapeutic targets for children with DCD, beyond motor skill intervention.

摘要

背景

尽管发育性协调障碍(DCD)主要是一种运动障碍,但它也会影响患有这种疾病的儿童的情绪和社会心理功能。有证据表明,DCD 儿童的生活质量低于同龄人,但很少有研究明确检查这些儿童的健康相关生活质量(HRQOL)。

目的

(1)描述 DCD 儿童与正常发育儿童的 HRQOL 比较;(2)比较 DCD 儿童及其父母对 HRQOL 的看法;(3)探讨 DCD 儿童 HRQOL 的预测因素。

方法

从 50 名 DCD 儿童(平均年龄(标准差):9.8(1.2)岁)及其父母那里收集了 KidScreen-52 和 Strength 和 Difficulties Questionnaire 的数据,并与正态数据进行了比较。

结果

与已发表的规范相比,DCD 儿童及其父母报告的 HRQOL 明显较低。在许多领域,照顾者对孩子的 HRQOL 的看法明显低于孩子的自我报告。与规范相比,DCD 儿童的父母报告说,他们的孩子经历了更多的情绪和行为障碍。运动功能差和注意力困难预测 HRQOL。

结论和意义

DCD 似乎会导致感知到的 HRQOL 降低。这些发现为 DCD 儿童的治疗目标提供了信息,超越了运动技能干预。

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