Parkinson Lynne, Banbury Annie, Livingstone Anne, Gordon Steven, Ray Biplob, Byrne Louise, Nancarrow Susan, Doran Chris, McAllister Margaret, Petersen Carrie, Pedell Sonja, Wood Denise
University of Newcastle, Newcastle, Australia.
Prevention First, Kingscliff, New South Wales, Australia.
Stud Health Technol Inform. 2018;246:29-41.
In rural Australia, knowledge and utilisation of support by informal carers is lacking. During the caregiving period, socioemotional support from family and friends plays an important role in sustaining caregiving activities. Post-care, these social networks facilitate adjustment to role change and dealing with grief. Developing and improving access to peer support to enable carers to effectively cope with the challenges of caring may positively influence their caring experience. The primary objective of this project is to examine the response of isolated rural carers for older people with dementia to a videoconference (VC) based peer support and information program. Will participation in the program improve self-efficacy, quality of life, and mental health? Secondary objectives are to develop a VC based peer support program for isolated rural carers for older people with dementia, using a co-design approach; and to assess the feasibility of VC technology for enhancing social support to family caregivers in their homes. This project will collaboratively co-design and evaluate a facilitated VC peer support and information program to carers of people with dementia within rural areas. Carers will be recruited through community health and care providers. Program development will use an information sharing approach to facilitate social interaction. A focus of the project is to use off-the-shelf technology which will be more accessible than specialised bespoke solutions that are currently popular in this area of research. A mixed methods repeated measures randomized wait list design will be used to evaluate the project. The primary outcomes are self-efficacy, quality of life, and mental health. Secondary outcomes are perceived social support and user satisfaction with the technology, and intention to continue VC interaction.
在澳大利亚农村地区,非正式护理人员对支持的了解和利用情况较为欠缺。在护理期间,来自家人和朋友的社会情感支持对于维持护理活动起着重要作用。护理结束后,这些社交网络有助于适应角色转变和应对悲痛情绪。开发并改善获得同伴支持的途径,以使护理人员能够有效应对护理挑战,可能会对他们的护理体验产生积极影响。本项目的主要目标是研究农村地区孤立无援的老年痴呆症患者护理人员对基于视频会议(VC)的同伴支持和信息项目的反应。参与该项目是否会提高自我效能感、生活质量和心理健康水平?次要目标是采用共同设计方法,为农村地区孤立无援的老年痴呆症患者护理人员开发一个基于视频会议的同伴支持项目;并评估视频会议技术在增强对家庭护理人员居家社会支持方面的可行性。本项目将共同设计并评估一个为农村地区老年痴呆症患者护理人员提供便利的视频会议同伴支持和信息项目。护理人员将通过社区卫生和护理服务提供者招募。项目开发将采用信息共享方法来促进社交互动。该项目的一个重点是使用现成技术,这将比目前该研究领域流行的专门定制解决方案更容易获得。将采用混合方法重复测量随机等待列表设计来评估该项目。主要结果是自我效能感、生活质量和心理健康。次要结果是感知到的社会支持、对该技术的用户满意度以及继续进行视频会议互动的意愿。