Akyüz Özdemir Aydan, Sayın Cihat Burak, Erdal Rengin, Özcan Cihangir, Haberal Mehmet
From the Public Health Department, Baskent University, Ankara, Turkey.
Exp Clin Transplant. 2018 Mar;16 Suppl 1(Suppl 1):112-116. doi: 10.6002/ect.TOND-TDTD2017.P4.
End-stage renal disease is a disease with a long duration, requiring patients to live with the limitations imposed by their condition. Stressors associated with this disease are demanding, with patients dependent on support from their social environment. Here, we aimed to show the influences of familial, social, economic, and marital status on quality of life in patients with end-stage renal disease.
Patients (190 women/188 men) who were under hemodialysis treatment and on transplant wait lists were included in the study. To evaluate the quality of life, patients completed the Short Form 36 health survey questionnaire voluntarily while undergoing hemodialysis treatment. All Short Form 36 questionnaire components were analyzed separately, and all social, economic, and business life dimensions were examined with another questionnaire.
Significant differences were observed between single and married patients regarding physical and mental health dimensions (P < .001), with quality of life higher in single patients than in married. Patients who lived in villages had lower health quality than patients who resided in cities or towns (P < .01). Patients who were home owners and who had a job had higher degrees of health quality than those who did not (P < .01). The lowest Short Form 36 scores were in housewives and farmers (P < .001). Comparisons between patients who went home after hemodialysis versus those who went to work showed better Short Form 36 scores in working patients (P < .001). Patients with private insurance and family support had better Short Form 36 scores (P < .001). Patients who did not comply with their doctor and dietician showed the lowest health quality (P < .05). Regular or irregular drug use did not affect scores.
Familial, social, economic, and marital statuses, in addition to the influence of disease adaptation, independently affected the well-being of patients with end-stage renal disease.
终末期肾病病程漫长，患者需在病情限制下生活。与该疾病相关的压力因素很多，患者依赖社会环境的支持。在此，我们旨在展示家庭、社会、经济和婚姻状况对终末期肾病患者生活质量的影响。
本研究纳入了正在接受血液透析治疗且在移植等待名单上的患者（190名女性/188名男性）。为评估生活质量，患者在接受血液透析治疗期间自愿完成36项简短健康调查问卷。对36项调查问卷的所有组成部分分别进行分析，并用另一问卷对所有社会、经济和职业生活维度进行调查。
单身患者与已婚患者在身心健康维度上存在显著差异（P <.001），单身患者的生活质量高于已婚患者。居住在农村的患者健康质量低于居住在城市或城镇的患者（P <.01）。拥有自有住房且有工作的患者健康质量高于没有的患者（P <.01）。36项简短健康调查问卷得分最低的是家庭主妇和农民（P <.001）。血液透析后回家的患者与去工作的患者相比，工作的患者36项简短健康调查问卷得分更高（P <.001）。拥有私人保险和家庭支持的患者36项简短健康调查问卷得分更高（P <.001）。不遵从医生和营养师建议的患者健康质量最低（P <.05）。规律或不规律用药不影响得分。
除疾病适应的影响外，家庭、社会、经济和婚姻状况独立影响终末期肾病患者的幸福感。
