McKinlay Eileen, McDonald Janet, Darlow Ben, Perry Meredith
J Prim Health Care. 2017 Jun;9(2):153-161. doi: 10.1071/HC16062.
INTRODUCTION Multimorbidity impacts on patients' health and wellbeing, but relationships experienced within social networks can support people to live well. AIM This study sought to elicit the views of New Zealanders with multimorbidity about their social networks and the views of their nominated supporters. METHODS Ten patients with multimorbidity and their nominated supporters each independently recorded their views of the patient's social network on a five-concentric-circle template, indicating supporting role and importance to each patient. Sets of patients' and nominated supporters' templates were compared followed by comparing matched pairs of patient-supporter templates. Nominated supporters' views about the patients' networks and why they were nominated were collated. RESULTS Three patients nominated family members as supporters and seven nominated health professionals. Nominated family members identified a greater range of supporters than nominated health professionals. Nominated family members perceived that they played an integral role, whereas health professionals were less comfortable viewing relationships with patients in this way. Family members were not surprised to be nominated as supporters, and some described a considerable burden of care. Health professionals described themselves as coordinators of support and having positive relationships with patients. DISCUSSION Patients with multimorbidity have rich and diverse social networks. They view partners, family and health professionals as providing significant support. Family members are more aware of their role and have a deeper understanding of other network members than health professionals. Further research is needed on the use of social networks in clinical practice to support the health and wellbeing of those with multimorbidity.
引言 多种疾病共患会影响患者的健康和幸福,但社交网络中的人际关系可以帮助人们过上健康的生活。目的 本研究旨在了解患有多种疾病的新西兰人对其社交网络的看法以及他们指定的支持者的看法。方法 10名患有多种疾病的患者及其指定的支持者各自在一个五同心圆模板上独立记录他们对患者社交网络的看法,标明支持角色以及对每位患者的重要性。比较患者和指定支持者的模板集,然后比较患者 - 支持者模板的匹配对。整理指定支持者对患者社交网络的看法以及他们被提名的原因。结果 3名患者指定家庭成员为支持者,7名患者指定医疗专业人员。被提名的家庭成员确定的支持者范围比被提名的医疗专业人员更广。被提名的家庭成员认为他们发挥了不可或缺的作用,而医疗专业人员不太愿意以这种方式看待与患者的关系。家庭成员对被提名为支持者并不感到惊讶,有些人描述了相当大的护理负担。医疗专业人员将自己描述为支持的协调者,并与患者保持着积极的关系。讨论 患有多种疾病的患者拥有丰富多样的社交网络。他们认为伴侣、家人和医疗专业人员提供了重要支持。与医疗专业人员相比,家庭成员更清楚自己的角色,对其他网络成员有更深入的了解。需要进一步研究在临床实践中利用社交网络来支持患有多种疾病的人的健康和幸福。