Coventry Peter A, Fisher Louise, Kenning Cassandra, Bee Penny, Bower Peter
BMC Health Serv Res. 2014 Oct 31;14:536. doi: 10.1186/s12913-014-0536-y.
Primary care is increasingly focussed on the care of people with two or more long-term conditions (multimorbidity). The UK Department of Health strategy for long term conditions is to use self-management support for the majority of patients but there is evidence of limited engagement among primary care professionals and patients with multimorbidity. Furthermore, multimorbidity is more common in areas of socioeconomic deprivation but deprivation may act as a barrier to patient engagement in self-management practices.
Effective self-management is considered critical to meet the needs of people living with long term conditions but achieving this is a significant challenge in patients with multimorbidity. This study aimed to explore patient and practitioner views on factors influencing engagement in self-management in the context of multimorbidity.
A qualitative study using individual semi-structured interviews with 20 patients and 20 practitioners drawn from four general practices in Greater Manchester situated in areas of high and low social deprivation.
Three main factors were identified as influencing patient engagement in self-management: capacity (access and availability of socio-economic resources and time; knowledge; and emotional and physical energy), responsibility (the degree to which patients and practitioners agreed about the division of labour about chronic disease management, including self-management) and motivation (willingness to take-up types of self-management practices). Socioeconomic deprivation negatively impacted on all three factors. Motivation was especially reduced in the presence of mental and physical multimorbidity.
Full engagement in self-management practices in multimorbidity was only present where patients' articulated a sense of capacity, responsibility, and motivation. Patient 'know-how' or interpretive capacity to self-manage multimorbidity is potentially an important precursor to responsibility and motivation, and might be a critical target for intervention. However, individual and social resources are needed to generate capacity, responsibility, and motivation for self-management, pointing to a balanced role for health services and wider enabling networks.
初级保健越来越关注患有两种或更多种长期疾病(多重疾病)的人群。英国卫生部针对长期疾病的策略是对大多数患者提供自我管理支持,但有证据表明初级保健专业人员和患有多重疾病的患者参与度有限。此外,多重疾病在社会经济贫困地区更为常见,但贫困可能成为患者参与自我管理实践的障碍。
有效的自我管理被认为对于满足患有长期疾病人群的需求至关重要,但对于患有多重疾病的患者来说,实现这一点是一项重大挑战。本研究旨在探讨患者和从业者对多重疾病背景下影响自我管理参与度的因素的看法。
采用定性研究方法,对从大曼彻斯特四个普通诊所选取的20名患者和20名从业者进行个体半结构化访谈,这些诊所位于社会贫困程度高和低的地区。
确定了影响患者自我管理参与度的三个主要因素:能力(社会经济资源和时间的可及性和可用性;知识;以及情感和体力)、责任(患者和从业者就慢性病管理包括自我管理的分工达成一致的程度)和动机(采用自我管理实践类型的意愿)。社会经济贫困对所有这三个因素都产生了负面影响。在存在精神和身体多重疾病的情况下,动机尤其降低。
只有当患者明确表达出能力感、责任感和动机时,才会充分参与多重疾病的自我管理实践。患者自我管理多重疾病的“诀窍”或解释能力可能是责任感和动机的重要先兆,可能是干预的关键目标。然而,需要个人和社会资源来产生自我管理的能力、责任感和动机,这表明卫生服务和更广泛的支持网络应发挥平衡作用。