Gooding Kate, Makwinja Regina, Nyirenda Deborah, Vincent Robin, Sambakunsi Rodrick
Malawi Liverpool Wellcome Trust Clinical Research Programme, College of Medicine, Blantyre, 30096, Malawi.
Liverpool School of Tropical Medicine, Liverpool, Merseyside, L3 5QA, UK.
Wellcome Open Res. 2018 Feb 8;3:8. doi: 10.12688/wellcomeopenres.13790.1. eCollection 2018.
Evaluation of community and public engagement in research is important to deepen understanding of how engagement works and to enhance its effectiveness. Theories of change have been recommended for evaluating community engagement, for their ability to make explicit intended outcomes and understandings of how engagement activities contribute to these outcomes. However, there are few documented examples of using theories of change for evaluation of engagement. This article reports experience of using theories of change to develop a framework for evaluating community engagement in research at a clinical research organisation in Malawi. We describe the steps used to develop theories of change, and the way theories of change were used to design data collection plans. Based on our experience, we reflect on the advantages and challenges of the theory of change approach. The theories of change and evaluation framework were developed through a series of workshops and meetings between engagement practitioners, monitoring and evaluation staff, and researchers. We first identified goals for engagement, then used 'so that' chains to clarify pathways and intermediate outcomes between engagement activities and goals. Further meetings were held to refine initial theories of change, identify priority information needs, and define feasible evaluation methods. The theory of change approach had several benefits. In particular, it helped to construct an evaluation framework focused on relevant outcomes and not just activities. The process of reflecting on intended goals and pathways also helped staff to review the design of engagement activities. Challenges included practical considerations around time to consider evaluation plans among practitioners (a challenge for evaluation more generally regardless of method), and more fundamental difficulties related to identifying feasible and agreed outcomes. These experiences from Malawi provide lessons for other research organisations considering use of theories of change to support evaluation of community engagement.
评估社区和公众参与研究对于加深理解参与如何发挥作用以及提高其有效性至关重要。变革理论因其能够明确预期成果以及理解参与活动如何促成这些成果而被推荐用于评估社区参与。然而,鲜有关于使用变革理论进行参与评估的文献记载实例。本文报告了在马拉维的一个临床研究机构使用变革理论来制定评估社区参与研究框架的经验。我们描述了用于构建变革理论的步骤,以及变革理论用于设计数据收集计划的方式。基于我们的经验,我们反思了变革理论方法的优点和挑战。变革理论和评估框架是通过参与实践者、监测与评估人员以及研究人员之间的一系列研讨会和会议而制定的。我们首先确定参与的目标,然后使用“以便”链条来阐明参与活动与目标之间的途径和中间成果。进一步的会议用于完善初步的变革理论、确定优先信息需求并定义可行的评估方法。变革理论方法有诸多益处。特别是,它有助于构建一个侧重于相关成果而非仅仅是活动的评估框架。反思预期目标和途径的过程也有助于工作人员审查参与活动的设计。挑战包括实践者在考虑评估计划的时间方面的实际考量(这是更普遍的评估挑战,无论采用何种方法),以及与确定可行且达成共识的成果相关的更根本困难。马拉维的这些经验为其他考虑使用变革理论来支持社区参与评估的研究机构提供了借鉴。