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以患者为中心与子宫内膜异位症:定义、测量方法和现状。

Patient-centeredness and endometriosis: Definition, measurement, and current status.

机构信息

University of Leuven, Department of Development and Regeneration, UZ Herestraat 49, Bus 7003 06, 3000 Leuven, Belgium.

University of Leuven, Department of Public Health and Primary Care, Kapucijnenvoer 35 Blok d, Bus 7001, 3000 Leuven, Belgium.

出版信息

Best Pract Res Clin Obstet Gynaecol. 2018 Jul;50:11-17. doi: 10.1016/j.bpobgyn.2018.01.009. Epub 2018 Feb 8.

DOI:10.1016/j.bpobgyn.2018.01.009
PMID:29580773
Abstract

The patient-centeredness of care is important for health care quality, especially because it was recently associated with health-related quality of life, which is increasingly being recognized as the ultimate outcome parameter of health care. Therefore, insight into the definition, measurement, and current status of the patient-centeredness of clinics is important for all health care professionals caring for patients with endometriosis. The definition of patient-centered endometriosis care is based on research into the most common preferences, needs, and values of patients with endometriosis and can be summarized in ten dimensions. One valid and reliable questionnaire exists, the ENDOCARE questionnaire, which allows measuring the patient-centeredness status of an endometriosis clinic. This questionnaire has been used to benchmark centers in different countries and has allowed the identification of ten targets for improving the patient-centeredness of endometriosis care. The next step would be to use the ENDOCARE questionnaire before and after an improvement project.

摘要

以患者为中心的医疗护理对于医疗质量很重要,尤其是因为它最近与健康相关的生活质量相关联,而健康相关的生活质量越来越被认为是医疗保健的最终结果参数。因此,了解诊所以患者为中心的定义、衡量标准和现状对于所有照顾子宫内膜异位症患者的医疗保健专业人员都很重要。以患者为中心的子宫内膜异位症护理的定义是基于对子宫内膜异位症患者最常见的偏好、需求和价值观的研究,可以概括为十个维度。有一个有效的和可靠的问卷存在,即 ENDOCARE 问卷,它可以衡量子宫内膜异位症诊所的以患者为中心的状态。该问卷已被用于对不同国家的中心进行基准测试,并确定了提高子宫内膜异位症护理以患者为中心程度的十个目标。下一步将是在改进项目之前和之后使用 ENDOCARE 问卷。

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J Clin Med. 2025 Jan 3;14(1):248. doi: 10.3390/jcm14010248.
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Patient-centered endometriosis care implementation at tertiary and secondary care hospitals in Indonesia.印度尼西亚三级和二级医疗机构以患者为中心的子宫内膜异位症护理实施情况
Heliyon. 2024 Oct 28;10(21):e39914. doi: 10.1016/j.heliyon.2024.e39914. eCollection 2024 Nov 15.
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Understanding the impact of endometriosis on women's life: an integrative review of systematic reviews.
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BMC Womens Health. 2024 Sep 19;24(1):524. doi: 10.1186/s12905-024-03369-5.
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Perceived challenges in treatment decision-making for endometriosis: healthcare professional perspectives.子宫内膜异位症治疗决策中察觉到的挑战:医疗保健专业人员的观点。
Health Psychol Behav Med. 2024 Aug 1;12(1):2383469. doi: 10.1080/21642850.2024.2383469. eCollection 2024.
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"SO FAR AWAY" How Doctors Can Contribute to Making Endometriosis Hell on Earth. A Call for Humanistic Medicine and Empathetic Practice for Genuine Person-Centered Care. A Narrative Review.《如此遥远》:医生如何助力让子宫内膜异位症成为人间炼狱。呼吁人文医学与共情实践以实现真正的以患者为中心的护理。一篇叙述性综述
Int J Womens Health. 2024 Feb 19;16:273-287. doi: 10.2147/IJWH.S440542. eCollection 2024.
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Patient experiences of being advised by a healthcare professional to get pregnant to manage or treat endometriosis: a cross-sectional study.患者在被医疗保健专业人员建议为了治疗或管理子宫内膜异位症而怀孕时的体验:一项横断面研究。
BMC Womens Health. 2023 Nov 30;23(1):638. doi: 10.1186/s12905-023-02794-2.
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