Strömberg Clara, Olovsson Matts, Grundström Hanna
Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden.
Department of Obstetrics and Gynaecology in Norrköping, and Department of Biomedical and Clinical Sciences, Linköping University, Linköping, Sweden.
J Obstet Gynaecol. 2022 Oct;42(7):3356-3361. doi: 10.1080/01443615.2022.2125796. Epub 2022 Oct 4.
Younger women with endometriosis report lower quality of life and seek more care. Patient-centeredness is a central part of quality of care. The aim of this study was to investigate if women younger than 35 years experience endometriosis care as less patient-centred than women 35 years and older. The ENDOCARE Questionnaire was sent to 1000 randomly selected women with verified endometriosis from 10 clinics in Sweden. Answers from 469 women were analysed using Mann-Whitney's -test and Spearman's correlation. Our findings show that younger women experience care as less patient-centred regarding 'Physical comfort,' 'Continuity,' 'Access to care,' 'Technical skills,' and overall patient-centeredness score in comparison with older women. On the contrary, younger women experience more patient-centeredness in 'Emotional support'. Positive correlations were found for age and 'Access to care' and 'Technical skills', while a negative correlation was found for age and 'Emotional support'. Impact Statement There is a need for improvement of quality of endometriosis care. Patient-centeredness is an important part of care improvement work. Many factors have an impact on experienced patient-centeredness in endometriosis care, whereof age is one possible determinant. Given the impact of age on QoL and care seeking behaviour, age may also have influence on the experience patient-centeredness. Our findings show that younger women experience their endometriosis care as less patient-centred than older women. Our results highlight the need of improvement of endometriosis care, especially for younger women. The results contribute to the understanding of the experience of patient-centeredness, which may be used as a guidance to how healthcare recourses should be allocated. Further research is needed to identify other factors contributing to the experience of patient-centeredness. Future studies could also evaluate how different interventions can improve patient-centeredness.
患有子宫内膜异位症的年轻女性报告生活质量较低且寻求更多治疗。以患者为中心是护理质量的核心部分。本研究的目的是调查35岁以下的女性是否比35岁及以上的女性感受到的子宫内膜异位症护理的以患者为中心程度更低。ENDOCARE问卷被发送给瑞典10家诊所随机挑选的1000名经证实患有子宫内膜异位症的女性。对469名女性的回答使用曼-惠特尼U检验和斯皮尔曼相关性分析。我们的研究结果表明，与年长女性相比，年轻女性在“身体舒适度”“连续性”“获得护理的机会”“技术技能”以及整体以患者为中心得分方面感受到的护理以患者为中心程度较低。相反，年轻女性在“情感支持”方面感受到的以患者为中心程度更高。年龄与“获得护理的机会”和“技术技能”呈正相关，而年龄与“情感支持”呈负相关。影响声明需要改善子宫内膜异位症护理质量。以患者为中心是护理改善工作的重要组成部分。许多因素会影响子宫内膜异位症护理中感受到的以患者为中心程度，其中年龄是一个可能的决定因素。鉴于年龄对生活质量和就医行为的影响，年龄也可能影响感受到的以患者为中心程度。我们的研究结果表明，年轻女性比年长女性感受到的子宫内膜异位症护理以患者为中心程度更低。我们的结果强调了改善子宫内膜异位症护理的必要性，尤其是对年轻女性。这些结果有助于理解以患者为中心的体验，这可作为医疗资源分配方式的指导。需要进一步研究以确定导致以患者为中心体验的其他因素。未来的研究还可以评估不同干预措施如何改善以患者为中心程度。
