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儿科和青年炎症性肠病患者的医疗保健过渡:一项范围综述

Healthcare Transition in Pediatrics and Young Adults With Inflammatory Bowel Disease: A Scoping Review.

作者信息

Rohatinsky Noelle, Risling Tracie, Kumaran Maha, Hellsten Laurie-Ann M, Thorp-Froslie Nancy

机构信息

Noelle Rohatinsky, PhD, RN, CMSN(C), is Assistant Professor, College of Nursing, University of Saskatchewan, Saskatoon, Canada. Tracie Risling, PhD, RN, is Assistant Professor, College of Nursing, University of Saskatchewan, Saskatoon, Canada. Maha Kumaran, MA, MLIS, is Librarian, Leslie & Irene Dubé Health Sciences Library, University of Saskatchewan, Saskatoon, Canada. Laurie-ann M. Hellsten, PhD, is Professor, Department of Educational Psychology and Special Education, College of Education, University of Saskatchewan, Saskatoon, Canada. Nancy Thorp-Froslie, MPH, is Registered Nursing Student, College of Nursing, University of Saskatchewan, Saskatoon, Canada.

出版信息

Gastroenterol Nurs. 2018 Mar/Apr;41(2):145-158. doi: 10.1097/SGA.0000000000000345.

DOI:10.1097/SGA.0000000000000345
PMID:29596129
Abstract

The incidence of inflammatory bowel disease has steadily increased in children within the last decade. As young adults transition into the adult healthcare system, lack of support can lead to disease exacerbations and disease-related complications. The purpose of this scoping review was to examine the current healthcare transition literature in pediatrics and young adults with inflammatory bowel disease, with a particular focus on assessment or screening tools to evaluate healthcare transition readiness. Five most relevant databases were searched. Of these, 22 articles met the inclusion criteria and key findings from these are summarized. The majority of articles focused on adolescents or young adults with inflammatory bowel disease and were primarily published in the United States. Since 2008, there has been a growing trend in publications of inflammatory bowel disease healthcare transition literature. Articles were often described as healthcare transition readiness assessment tools, patient outcomes following transition, or transition experiences and barriers. An understanding of the current literature on the readiness assessment and support strategies is required to promote an improved quality of life for pediatric and young adult patients living with inflammatory bowel disease.

摘要

在过去十年中,儿童炎症性肠病的发病率稳步上升。随着青少年向成人医疗保健系统过渡,缺乏支持可能导致疾病恶化和与疾病相关的并发症。本范围综述的目的是研究目前关于儿科和患有炎症性肠病的青少年的医疗保健过渡文献,特别关注用于评估医疗保健过渡准备情况的评估或筛查工具。检索了五个最相关的数据库。其中,22篇文章符合纳入标准,并对这些文章的主要发现进行了总结。大多数文章关注的是患有炎症性肠病的青少年或年轻人,且主要发表于美国。自2008年以来,炎症性肠病医疗保健过渡文献的发表呈增长趋势。文章通常被描述为医疗保健过渡准备情况评估工具、过渡后的患者结局,或过渡经历与障碍。需要了解目前关于准备情况评估和支持策略的文献,以提高患有炎症性肠病的儿科和青少年患者的生活质量。

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引用本文的文献

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The Role of Internal Medicine-Pediatric Programs and Transition Champions in Graduate Medical Trainee Health Care Transition Development.内科-儿科项目和过渡冠军在住院医师医疗过渡发展中的作用。
J Adolesc Health. 2023 Aug;73(2):352-359. doi: 10.1016/j.jadohealth.2023.02.037. Epub 2023 May 2.
2
Outcomes of transitional care programs on adolescent chronic inflammatory systemic diseases: systematic review and meta-analyses.过渡护理方案对青少年慢性炎症性系统性疾病结局的影响:系统评价和荟萃分析。
Pediatr Rheumatol Online J. 2022 Feb 17;20(1):15. doi: 10.1186/s12969-022-00670-1.
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The evolution of IBD perceived engagement and care needs across the life-cycle: a scoping review.
IBD 患者在生命周期中感知到的参与度和护理需求的演变:范围综述。
BMC Gastroenterol. 2021 Jul 14;21(1):293. doi: 10.1186/s12876-021-01850-1.
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Transition from child-centred to adult-oriented healthcare systems for young people with neurodisability: a scoping review protocol.为患有神经残疾的年轻人从以儿童为中心的医疗保健系统向以成人为导向的医疗保健系统过渡:一项范围综述方案
HRB Open Res. 2020 Sep 4;3:61. doi: 10.12688/hrbopenres.13095.1. eCollection 2020.