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炎症性肠病儿科至成人治疗的过渡:是否如此简单?

Transition of pediatric to adult care in inflammatory bowel disease: Is it as easy as 1, 2, 3?

机构信息

Anita Afzali, Division of Gastroenterology, University of Washington, Harborview Medical Center, Seattle, Washington, WA 98104, United States.

出版信息

World J Gastroenterol. 2017 May 28;23(20):3624-3631. doi: 10.3748/wjg.v23.i20.3624.

DOI:10.3748/wjg.v23.i20.3624
PMID:28611515
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC5449419/
Abstract

Inflammatory bowel disease (IBD) is a heterogeneous group of chronic diseases with a rising prevalence in the pediatric population, and up to 25% of IBD patients are diagnosed before 18 years of age. Adolescents with IBD tend to have more severe and extensive disease and eventually require graduation from pediatric care toadult services. The transition of patients from pediatric to adult gastroenterologists requires careful preparation and coordination, with involvement of all key players to ensure proper collaboration of care and avoid interruption in care. This can be challenging and associated with gaps in delivery of care. The pediatric and adult health paradigms have inherent differences between health care models, as well as health care priorities in IBD. The readiness of the young adult also influences this transition of care, with often times other overlaps in life events, such as school, financial independence and moving away from home. These patients are therefore at higher risk for poorer clinical disease outcomes. The aim of this paper is to review concepts pertinent to transition of care of young adults with IBD to adult care, and provides resources appropriate for an IBD pediatric to adult transition of care model.

摘要

炎症性肠病(IBD)是一组具有异质性的慢性疾病,在儿科人群中的发病率呈上升趋势,多达 25%的 IBD 患者在 18 岁之前被诊断出来。患有 IBD 的青少年往往病情更严重、更广泛,最终需要从儿科护理过渡到成人服务。患者从儿科到成人胃肠病学家的过渡需要精心准备和协调,所有关键参与者都参与其中,以确保护理的妥善合作,避免护理中断。这可能具有挑战性,并伴随着护理提供方面的差距。儿科和成人健康模式在 IBD 的医疗模式以及医疗优先事项方面存在固有差异。年轻成年人的准备情况也会影响这种护理的过渡,他们通常还会遇到其他生活事件的重叠,例如上学、经济独立和搬离家庭。因此,这些患者的临床疾病结局更差的风险更高。本文的目的是回顾与将患有 IBD 的年轻成年人的护理过渡到成人护理相关的概念,并提供适合 IBD 儿科到成人护理过渡模式的资源。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/086f/5449419/db90e5ea9c38/WJG-23-3624-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/086f/5449419/db90e5ea9c38/WJG-23-3624-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/086f/5449419/db90e5ea9c38/WJG-23-3624-g001.jpg

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本文引用的文献

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Transitioning the Adolescent with IBD from Pediatric to Adult Care: A Review of the Literature.炎症性肠病青少年患者从儿科护理过渡到成人护理:文献综述
Gastroenterol Res Pract. 2015;2015:853530. doi: 10.1155/2015/853530. Epub 2015 May 4.
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The Emerging Adult with Inflammatory Bowel Disease: Challenges and Recommendations for the Adult Gastroenterologist.患有炎症性肠病的青年成年人:成人胃肠病学家面临的挑战与建议
Developing IBD counsellors in low- and middle-income countries: bridging gaps in patient care.
在低收入和中等收入国家培养炎症性肠病顾问:弥合患者护理差距
EClinicalMedicine. 2025 Apr 24;83:103218. doi: 10.1016/j.eclinm.2025.103218. eCollection 2025 May.
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Young Adult Patient and Caregiver Perspectives on Transition Readiness in an Inflammatory Bowel Disease Clinic.青少年炎症性肠病患者及照料者对过渡准备状态的看法:来自炎症性肠病诊所的视角
Crohns Colitis 360. 2024 Jul 26;6(3):otae044. doi: 10.1093/crocol/otae044. eCollection 2024 Jul.
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Gas Chromatography-Sensor System Aids Diagnosis of Inflammatory Bowel Disease, and Separates Crohn's from Ulcerative Colitis, in Children.气相色谱-传感器系统有助于儿童炎症性肠病的诊断,并将克罗恩病与溃疡性结肠炎区分开来。
Sensors (Basel). 2024 Aug 5;24(15):5079. doi: 10.3390/s24155079.
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Patient, Parent, and Provider Perceptions of Barriers to Pediatric Inflammatory Bowel Disease Care.患者、家长及医疗服务提供者对儿童炎症性肠病护理障碍的认知
JPGN Rep. 2023 Nov 8;4(4):e386. doi: 10.1097/PG9.0000000000000386. eCollection 2023 Nov.
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