Glaser Dee Anna, Hebert Adelaide, Pieretti Lisa, Pariser David
J Drugs Dermatol. 2018 Apr 1;17(4):392-396.
Hyperhidrosis affects 4.8% of the US population, and despite the well documented negative impact of hyperhidrosis on patients' lives, data are generally lacking on the patient experience with this condition. The International Hyperhidrosis Society (IHHS) conducted a study in 2014, and initial results confirmed the multifaceted impact of hyperhidrosis on quality of life and underscored the need for disease awareness and effective management. To provide further insight into the hyperhidrosis patient experience, additional results focusing on family history, physician interaction, impact on daily activities, and treatment satisfaction are presented here. The online survey included 22 multiple-choice questions (some allowing multiple responses). Respondents were IHHS newsletter registrants in the US self-identified as suffering with excessive sweating (ie, answering 'yes' to Question 1). Of 28,587 survey invitations, a total of 5,042 recipients (17.6%) opened the e-mail, and 2,045 respondents provided an answer to Question 1. Of these, 1,985 (6.9%) self-identified as having excessive sweating and continued the survey. Over 18% of survey respondents reported an immediate family member with excessive sweating. The top three areas impacted by excessive sweating were daily activity, clothing choice, and work/career (average rank scores over 3.0 for each area; range 1-8 with lower scores indicating greater impact). Nearly half (48.9%) of respondents reported waiting 10 or more years prior to seeking medical help, and 85.0% waited at least 3 years. Of the 87.2% of respondents who received treatment for hyperhidrosis, patients were most satisfied with injections and least satisfied with prescription and over-the-counter antiperspirants and liposuction. These survey results add important clinical insight for the underserved hyperhidrosis patient population. The reported delay in seeking proper medical attention highlights the need to increase hyperhidrosis awareness among the public and clinicians, to reduce stigma associated with the condition, and to encourage active treatment strategies.
J Drugs Dermatol. 2018;17(4):392-396.
.多汗症影响着4.8%的美国人口，尽管多汗症对患者生活产生的负面影响已有充分记录，但关于患者对此病症体验的数据普遍匮乏。国际多汗症协会（IHHS）在2014年开展了一项研究，初步结果证实了多汗症对生活质量的多方面影响，并强调了提高疾病认知度和有效管理的必要性。为了进一步深入了解多汗症患者的体验，本文呈现了聚焦家族病史、与医生互动、对日常活动的影响以及治疗满意度的更多结果。在线调查包括22个多项选择题（部分允许多项回答）。受访者是美国自行认定患有多汗症（即对问题1回答“是”）的IHHS时事通讯订阅者。在28587份调查邀请中，共有5042名收件人（17.6%）打开了电子邮件，2045名受访者回答了问题1。其中，1985人（6.9%）自行认定患有多汗症并继续参与调查。超过18%的调查受访者报告有直系亲属患有多汗症。受多汗症影响最大的三个方面是日常活动、服装选择和工作/职业（每个方面的平均排名得分超过3.0；范围为1 - 8，分数越低影响越大）。近一半（48.9%）的受访者报告在寻求医疗帮助前等待了10年或更长时间，85.0%的人至少等待了3年。在接受多汗症治疗的87.2%的受访者中，患者对注射治疗最满意，对处方和非处方止汗剂以及抽脂术最不满意。这些调查结果为未得到充分治疗的多汗症患者群体增添了重要的临床见解。报告中提到的寻求适当医疗关注的延迟凸显了提高公众和临床医生对多汗症认知度的必要性，以减少与该病症相关的污名，并鼓励积极的治疗策略。
《皮肤药物学杂志》。2018年；17(4):392 - 396。
