Gondivkar Shailesh M, Bhowate Rahul R, Gadbail Amol R, Sarode Sachin C, Gondivkar Rima S, Yuwanati Monal, Patil Shankargouda
Department of Oral Medicine and Radiology, Government Dental College & Hospital, Nagpur, Maharashtra, India, Phone: +919604121273 e-mail:
Department of Oral Medicine and Radiology, Sharad Pawar Dental College & Hospital, Wardha, Maharashtra, India.
J Contemp Dent Pract. 2018 Mar 1;19(3):331-338.
The aim of this study was to explore the patients' perspectives about the impact of oral submucous fibrosis (OSF) on life quality.
Thirty clinically diagnosed OSF patients with a wide degree of disease severity and diverse range of sociodemographic profile were included in this study. Fourteen participants were interviewed and four focus group discussions were conducted in nonclinical settings. The audio recordings were anonymized, transcribed, and translated in English from Marathi language. Data were analyzed using an in-depth narrative thematic analysis method.
Four main themes evolved from the interviews: (1) discomfort and functional impairment; (2) psychological wellness; (3) physical wellness, and (4) social wellness. Majority of the participants discussed about discomfort and functional impairment. Participants also reported greater impact of OSF on psychological and social wellness.
This study demonstrated the impact of OSF on different aspects of participant's life. "Discomfort and functional impairment" was noticed to be the most recognized theme by our participants. However, OSF also has impacts on other important domains, namely psychological, social, and physical wellness.
The patient-reported outcome (PRO) measure (PROM) reflects an integral aspect of general health and well-being and thus can be used to elucidate the impact of OSF on the quality of life (QoL) of affected individuals. These patients' perspectives should be taken into consideration along with thorough clinical examination to decide and effectively manage the overall health care needs of the OSF patients.
本研究旨在探讨患者对口腔黏膜下纤维化（OSF）对生活质量影响的看法。
本研究纳入了30例临床诊断为OSF的患者，其疾病严重程度范围广泛，社会人口统计学特征多样。对14名参与者进行了访谈，并在非临床环境中进行了4次焦点小组讨论。录音进行了匿名处理、转录，并从马拉地语翻译成英语。采用深入的叙事主题分析方法对数据进行分析。
访谈产生了四个主要主题：（1）不适与功能障碍；（2）心理健康；（3）身体健康，以及（4）社会健康。大多数参与者讨论了不适与功能障碍。参与者还报告了OSF对心理和社会健康的更大影响。
本研究证明了OSF对参与者生活不同方面的影响。“不适与功能障碍”是我们的参与者最认可的主题。然而，OSF也对其他重要领域有影响，即心理、社会和身体健康。
患者报告结局（PRO）测量（PROM）反映了总体健康和幸福的一个不可或缺的方面，因此可用于阐明OSF对受影响个体生活质量（QoL）的影响。在决定并有效管理OSF患者的整体医疗需求时，应将这些患者的观点与全面的临床检查一并考虑。
