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如果你想了解丛集性头痛患者的真实生活状况,想象一下……通过欧洲患者讲述自身经历来培养同理心。

If you want to understand what it really means to live with cluster headache, imagine... fostering empathy through European patients' own stories of their experiences.

作者信息

Rossi Paolo, Little P, De La Torre E R, Palmaro A

出版信息

Funct Neurol. 2018 Jan/Mar;33(1):57-59. doi: 10.11138/fneur/2018.33.1.057.

Abstract

Cluster headache (CH) is arguably the most severe pain condition that afflicts humans. The severity of the pain has earned it the nickname "suicide headache". Understanding how CH impacts on those who suffer from it is essential, because this understanding creates empathy, which is so valuable to these patients. On the occasion of Cluster Headache Day 2017, we asked CH patients from different European countries to share their experiences, in order to help people to imagine what it means to live with the condition. Here, we look at some extracts from their stories. These CH patients' direct accounts provide an important illustration of the clinical features and consequences of the disease, helping to contextualise it and its psychological and social consequences. Reports of CH patients' first-person accounts might help to underline the physicians' role and responsibility with regard to the psychological and social consequences of this disease.

摘要

丛集性头痛(CH)可以说是折磨人类的最严重的疼痛病症。其疼痛的严重性为它赢得了“自杀性头痛”这一昵称。了解丛集性头痛如何影响患者至关重要,因为这种了解能产生同理心,而同理心对这些患者非常宝贵。在2017年丛集性头痛日之际,我们邀请了来自不同欧洲国家的丛集性头痛患者分享他们的经历,以便帮助人们想象患有这种疾病意味着什么。在此,我们看看他们故事中的一些摘录。这些丛集性头痛患者的直接叙述为该疾病的临床特征和后果提供了重要例证,有助于将其与心理和社会后果联系起来。丛集性头痛患者第一人称叙述的报告可能有助于凸显医生在该疾病心理和社会后果方面的作用和责任。

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本文引用的文献

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Cluster headache.丛集性头痛
BMJ. 2012 Apr 11;344:e2407. doi: 10.1136/bmj.e2407.
8
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Cephalalgia. 2011 Apr;31(6):671-82. doi: 10.1177/0333102410391489. Epub 2010 Dec 1.
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J Gen Intern Med. 2009 Jan;24(1):122-5. doi: 10.1007/s11606-008-0849-9. Epub 2008 Nov 18.
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Burden of cluster headache.丛集性头痛的负担
Cephalalgia. 2007 Jun;27(6):535-41. doi: 10.1111/j.1468-2982.2007.01330.x. Epub 2007 Apr 25.

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