Rozensztrauch Anna, Śmigiel Robert, Patkowski Dariusz
Department of Pediatrics, Wroclaw Medical University, Wroclaw, Poland.
Department of Pediatric Surgery and Urology, Wroclaw Medical University, Wroclaw, Poland.
Eur J Pediatr Surg. 2019 Jun;29(3):266-270. doi: 10.1055/s-0038-1641597. Epub 2018 Apr 10.
Esophageal atresia (EA) is one of the most frequent congenital malformations of the gastrointestinal tract. The aim of the study was to assess surgical treatment results in the context of the quality of life (QoL) of children after correction of EA.
The data were collected among 73 patients after surgery of EA. The work diagnostic survey method was applied using authors' own questionnaire and standardized questionnaire, the PedsQL 4.0 generic core scales. Analysis of children growth was done based on World Health Organization percentile charts for body height and weight. Medical background for each patient, including demographic data, type of EA, type of delivery, the age of gestation, associated anomalies, mode of repair-primary and subsequent, if applicable, was collected from clinical records. Additional anomalies were divided into cardiac, skeletal, respiratory, renal, central nervous system, and other malformations (VACTERL association, CHARGE syndrome, trisomy chromosomes 18 and 21, and others).
In this study, 23% of children in the study group weighted below third percentile, 36% were born between 33rd and 37th week of gestation; 56% had at least one associated congenital anomalies. The QoL of children born before 37th week of gestational age was lower ( < 0.034) in social functioning than children born in term. The presence of concomitant anomalies does affect the overall generic QoL. No statistical correlation was found between the type of anomaly (with/without TEF) and patients' QoL.
It seems to be needed to extend psychological care of premature infants with EA.
食管闭锁（EA）是最常见的胃肠道先天性畸形之一。本研究的目的是在食管闭锁矫正术后儿童的生活质量（QoL）背景下评估手术治疗结果。
收集了73例食管闭锁手术后患者的数据。采用作者自编问卷和标准化问卷PedsQL 4.0通用核心量表进行工作诊断调查。根据世界卫生组织身高和体重百分位数图表对儿童生长情况进行分析。从临床记录中收集每位患者的医学背景，包括人口统计学数据、食管闭锁类型、分娩方式、妊娠年龄、相关异常、修复方式（初次和后续，如适用）。额外的异常分为心脏、骨骼、呼吸、肾脏、中枢神经系统和其他畸形（VACTERL综合征、CHARGE综合征、18号和21号染色体三体等）。
在本研究中，研究组23%的儿童体重低于第三百分位数，36%的儿童出生于妊娠第33至37周；56%的儿童至少有一种相关先天性异常。孕周小于37周出生的儿童在社会功能方面的生活质量低于足月儿（<0.034）。合并异常的存在确实会影响总体通用生活质量。未发现异常类型（有/无食管气管瘘）与患者生活质量之间存在统计学相关性。
似乎需要扩大对食管闭锁早产儿的心理护理。
