Öst Elin, Nisell Margret, Burgos Carmen Mesas, Frenckner Björn, Öjmyr-Joelsson Maria
Department of Women's and Children's Health, Karolinska Institutet, 171 76, Stockholm, Sweden.
Pediatric Surgery Unit, Karolinska University Hospital, Astrid Lindgren Children's Hospital, 171 76, Stockholm, Sweden.
Pediatr Surg Int. 2018 Jun;34(6):653-661. doi: 10.1007/s00383-018-4266-9. Epub 2018 Apr 10.
The aim was to investigate social competence and behavioral and emotional problems in children and adolescents born with CDH.
All children born with CDH, treated in Stockholm 1990-2009, were invited to participate. After written consent, the Child Behavior Checklist or Adult Self-Report questionnaires were sent to participants. Of the 145 long-term survivors, 51% returned a completed questionnaire. Both the syndrome and competence scales were used and open-ended questions were analyzed with manifest content analysis.
All parents of children aged 1.5-5 years and 90% of parents of children aged 6-18 years reported a normal range on the syndrome scale. Five parents indicated internalizing, but none externalizing behavior. All young adults achieved a normal score on the syndrome scale. Eighty-five percent had normal school achievement, 79% had normal social scores and 40% had normal activity levels. Significantly fewer boys (23%) were in the normal activity range compared with 67% of girls.
The vast majority of all parents of children born with CDH scored no behavioral or emotional problems, furthermore, they reported normal social and school competence. However, the activity levels seemed to be reduced in children born with CDH.
旨在调查患有先天性膈疝（CDH）的儿童和青少年的社会能力以及行为和情绪问题。
邀请了1990年至2009年在斯德哥尔摩接受治疗的所有患有CDH的儿童参与。在获得书面同意后，向参与者发送儿童行为检查表或成人自我报告问卷。在145名长期幸存者中，51%返回了完整的问卷。同时使用了综合征量表和能力量表，并对开放式问题进行了显性内容分析。
所有1.5至5岁儿童的父母以及90%的6至18岁儿童的父母在综合征量表上报告的结果均在正常范围内。五名家长表示存在内化问题，但没有家长表示存在外化行为。所有年轻成年人在综合征量表上的得分均正常。85%的人学业成绩正常，79%的人社交得分正常，40%的人活动水平正常。与67%的女孩相比，处于正常活动范围内的男孩明显较少（23%）。
绝大多数患有CDH的儿童的父母在行为或情绪方面没有问题，此外，他们报告孩子的社交和学业能力正常。然而，患有CDH的儿童的活动水平似乎有所降低。
