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粉色底面:遗传性乳腺癌风险评估和决策工具的商业化

The Pink Underside: The Commercialization of Medical Risk Assessment and Decision-Making Tools for Hereditary Breast Cancer Risk.

机构信息

1 Boston College, Chestnut Hill, Massachusetts, USA.

出版信息

Qual Health Res. 2018 Aug;28(10):1523-1538. doi: 10.1177/1049732318767395. Epub 2018 Apr 11.

Abstract

The growth of the Internet since the millennium has opened up a myriad of opportunities for education, particularly in medicine. Although those looking for health care information used to have to turn to a face-to-face doctor's visit, an immense library of medical advice is now available at their fingertips. The BRCA genetic predispositions (mutations of the BRCA1 and BRCA2 breast cancer genes) which expose men and women to greater risk of breast, ovarian, and other cancers can be researched extensively online. Several nonprofit organizations now offer online risk assessment and decision-making tools meant to supplement conversation with medical professionals, which in actuality are quickly replacing it. We argue here through a critical qualitative template analysis of several such tools that the discursive frameworks utilized are prone to fearmongering, commercialization, and questionable validity. Left unchecked, these assessment tools could do more harm than good in driving young women especially to take unnecessary extreme surgical action.

摘要

自千禧年以来,互联网的发展为教育领域带来了无数的机会,尤其是在医学领域。虽然过去人们在寻找医疗保健信息时,不得不求助于面对面的医生就诊,但现在他们可以轻松地在指尖上获得大量的医学建议。BRCA 遗传易感性(BRCA1 和 BRCA2 乳腺癌基因的突变)使男性和女性面临更大的乳腺癌、卵巢癌和其他癌症风险,可以在网上进行广泛研究。现在,一些非营利组织提供在线风险评估和决策工具,旨在补充与医疗专业人员的对话,实际上这些工具正在迅速取代这种对话。我们通过对几个这样的工具进行批判性的定性模板分析来论证,所使用的论述框架容易引起恐慌、商业化和有问题的有效性。如果不加控制,这些评估工具可能弊大于利,尤其是会促使年轻女性采取不必要的极端手术措施。

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