“如此庞大的数字不容忽视”:女性脑健康在线倡导中的性别、风险与责任

"You Can't Ignore a Number This Big": Gender, Risk, and Responsibility in Online Advocacy for Women's Brain Health.

作者信息

Mohr Victoria, Kleinherenbrink Annelies, Varis Piia

机构信息

Tilburg University, Tilburg, The Netherlands.

出版信息

Qual Health Res. 2021 Mar;31(4):677-690. doi: 10.1177/1049732320981893. Epub 2020 Dec 28.

Abstract

Alzheimer's disease affects more women than men and has therefore been highlighted as a women's issue. However, there is much debate regarding the nature of this gap, with some studies pointing to sex/gender differences in longevity to explain the disparity. Against this background of empirical uncertainty, we ask how online women's brain health campaigns position women as specifically at risk of developing the disease. Using a multimodal approach, we examine how these platforms relate womanhood to risk, prevention, and responsibility. Four main themes emerged: risk quantification, risk management, risk dispersion, and the gendering of risk. We confirm previous studies that identified a dual discourse in which Alzheimer's is represented as both a catastrophic threat and as a fate that individuals can and must prevent. We find that both constructions are intensified on women-oriented platforms compared with nonspecific websites. Ethical implications of the individualization and gendering of risk and responsibility are discussed.

摘要

阿尔茨海默病对女性的影响比对男性更大,因此它被视为一个女性问题而受到关注。然而,关于这种差距的本质存在很多争议,一些研究指出寿命方面的性别差异来解释这种差异。在这种实证不确定性的背景下,我们探讨在线女性大脑健康运动如何将女性定位为特别易患该病的人群。我们采用多模态方法,研究这些平台如何将女性特质与风险、预防和责任联系起来。出现了四个主要主题:风险量化、风险管理、风险分散以及风险的性别化。我们证实了之前的研究,该研究发现了一种双重话语,即阿尔茨海默病既被视为一种灾难性威胁,又被视为个人能够且必须预防的命运。我们发现,与非特定网站相比,在面向女性的平台上,这两种建构都得到了强化。我们还讨论了风险和责任个体化及性别化的伦理影响。

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