Shukla Shrivridhi, McCoyd Judith L M
a Rutgers, the State University of New Jersey School of Social Work , New Brunswick , NJ , USA.
Health Care Women Int. 2018 Jul;39(7):755-770. doi: 10.1080/07399332.2018.1462368. Epub 2018 May 15.
Women provide informal caregiving across the world and are often expected to provide care even when ailing themselves. We explore the lived experience of 33 impoverished married Indian women living with HIV and caring for their husbands and/or children living with HIV. Drawing on concepts of authoritative knowledge (AK), self-efficacy and resilience, we found a trajectory that reveals barriers to accessing care, yet we also found that women developed strengths and resiliency. Women gather information, develop "environ-info," and deliberatively weigh AK from health workers, family/friends' advice, and their own experiences. Over multiple iterations of this process, they build self-reliance and resilience.
在世界各地，女性都承担着非正式的照料工作，即便她们自己生病，往往也仍被期望提供照料。我们探究了33名贫困的印度已婚感染艾滋病毒女性的生活经历，她们既要照料感染艾滋病毒的丈夫，又要照料感染艾滋病毒的子女。借鉴权威知识（AK）、自我效能感和复原力的概念，我们发现了一条揭示获得护理障碍的轨迹，但我们也发现这些女性培养出了力量和复原力。女性收集信息，形成“环境信息”，并审慎权衡来自医护人员的权威知识、家人/朋友的建议以及她们自己的经验。在这个过程的多次反复中，她们建立起了自力更生和复原的能力。
