Viola Adrienne, Mitchell Hannah-Rose, Salner Andrew, Gillan Eileen, Rotatori Jaime, Cartmel Brenda, Santacroce Sheila, Ma Xiaomei, Kadan-Lottick Nina
Clin J Oncol Nurs. 2017 Jun 1;21(3):E71-E78. doi: 10.1188/17.CJON.E71-E78.
Adolescents and young adults (AYAs) face increased risk for physical, social, and cognitive late complications of cancer therapy. Strategies are needed to better engage AYAs in survivorship research.
This study aimed to determine the feasibility of enrolling AYAs within six months of diagnosis to a survivorship study and assess their health concerns and survivorship care preferences.
Patients aged 15–34 years who were diagnosed with leukemia, lymphoma, or sarcoma at three Connecticut hospitals from 2008–2011 were identified and recruited by mail. Participants and their physicians received a survivorship care plan. Participants completed surveys at 6 months and 18 months after diagnosis.
Recruiting AYAs to survivorship research remains challenging, even when approaching them soon after diagnosis. Novel strategies are needed for nurses and other healthcare team members to engage AYAs in survivorship care and research.
青少年和青年（AYA）面临癌症治疗后身体、社交和认知方面晚期并发症风险增加的问题。需要采取策略，以便更好地让AYA参与生存研究。
本研究旨在确定在诊断后6个月内将AYA纳入生存研究的可行性，并评估他们对健康的关注以及生存护理偏好。
确定了2008年至2011年在康涅狄格州三家医院被诊断为白血病、淋巴瘤或肉瘤的15至34岁患者，并通过邮件招募。参与者及其医生收到了一份生存护理计划。参与者在诊断后6个月和18个月完成调查。
将AYA纳入生存研究仍然具有挑战性，即使在诊断后不久就接触他们。护士和其他医疗团队成员需要新的策略，以使AYA参与生存护理和研究。
