Baker David, Eccles Fiona J R, Caswell Helen L
Division of Health Research, Faculty of Health and Medicine, Furness College, Lancaster University, Lancaster LA1 4YG, United Kingdom.
Division of Health Research, Faculty of Health and Medicine, Furness College, Lancaster University, Lancaster LA1 4YG, United Kingdom.
Epilepsy Behav. 2018 Jun;83:67-80. doi: 10.1016/j.yebeh.2018.02.016. Epub 2018 Apr 24.
The aim of this review was to identify quantitative correlates, predictors, and outcomes of stigma in adults with epilepsy living in Western countries.
To identify relevant literature, four academic databases (PsycINFO, CINAHL, PubMed, and Scopus) were systematically searched using key terms related to stigma and epilepsy.
Thirty-three research papers reporting findings from 25 quantitative studies of correlates of stigma in epilepsy were identified. The findings suggest that stigma can be predicted by demographic, illness-related, and psychosocial factors, although associations were found to be highly culturally specific. Outcomes of stigma in people with epilepsy were replicated more consistently across cultures, and its impact was significant. Detrimental effects included both worse physical health, including less effective management of the condition, and reduced psychological well-being, including difficulties such as depression and anxiety.
Educational initiatives and therapeutic interventions that aim to address stigma in people with epilepsy are recommended; however, these need to be culturally informed to ensure that they are valid and effective.
本综述的目的是确定生活在西方国家的成年癫痫患者耻辱感的定量相关因素、预测因素和后果。
为了识别相关文献，使用与耻辱感和癫痫相关的关键词，系统检索了四个学术数据库（心理学文摘数据库、护理学与健康领域数据库、医学期刊数据库和Scopus数据库）。
共识别出33篇研究论文，报告了来自25项关于癫痫耻辱感相关因素的定量研究结果。研究结果表明，耻辱感可由人口统计学、疾病相关和心理社会因素预测，尽管发现这些关联具有高度的文化特异性。癫痫患者耻辱感的后果在不同文化中得到了更一致的重现，其影响是显著的。有害影响包括身体健康更差，包括病情管理效果不佳，以及心理健康下降，包括抑郁和焦虑等问题。
建议开展旨在解决癫痫患者耻辱感的教育举措和治疗干预；然而，这些举措需要考虑文化因素，以确保其有效性。
