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变形性肌紧张障碍:在康复科治疗的三例病例

Dystonia musculorum deformans: three cases treated on a rehabilitation unit.

作者信息

McGuire T J, Palaganas-Tosco A, Redford J B

机构信息

Department of Rehabilitation Medicine, University of Kansas School of Medicine, Kansas City 66103.

出版信息

Arch Phys Med Rehabil. 1988 May;69(5):373-6.

PMID:2966619
Abstract

Dystonia musculorum deformans is a rare involuntary movement disorder of unknown etiology. We treated three brothers in one family on our rehabilitation unit, resulting in definite improvement in their ability to walk and control the dystonic movements, and in their speech and swallowing. All three benefited from orthoses to prevent equinovarus and maintain ankle stability. Intense concentration, such as needlepoint, seemed to reduce the amount of extra motion. Performing another activity during dystonic movements, such as pointing to a communication board, also seemed to give some relief. A special seating system using a collapsible wheelchair, a low center of gravity, and antitip wheels reduced one brother's frequency of falling. Swallowing finely cut foods was not a problem with any of our patients, although one had to be instructed in a special technique. An electronic communication board was very helpful. Our success in these cases should encourage others working in rehabilitation to consider such patients and to apply the principles of rehabilitation, particularly the total team approach, in their care.

摘要

变形性肌张力障碍是一种病因不明的罕见的非自主性运动障碍。我们在康复科治疗了一个家庭中的三兄弟,使他们在行走、控制肌张力障碍性运动以及言语和吞咽能力方面有了明显改善。三人均受益于用于预防马蹄内翻足和维持踝关节稳定性的矫形器。诸如刺绣之类的高度集中注意力的活动似乎能减少多余动作的数量。在肌张力障碍性运动期间进行另一项活动,如指向交流板,似乎也能带来一些缓解。一种使用可折叠轮椅、低重心和防倾轮的特殊座椅系统减少了其中一个兄弟的跌倒频率。吞咽切碎的食物对我们所有患者来说都不是问题,不过其中一人需要接受特殊技巧的指导。电子交流板非常有帮助。我们在这些病例中的成功应该会鼓励其他从事康复工作的人员关注此类患者,并在护理中应用康复原则,尤其是团队协作的整体方法。

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