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美国护士协会伦理准则如何指导遗传/基因组护理。

How American Nurses Association Code of Ethics informs genetic/genomic nursing.

机构信息

University of Wisconsin-Madison, USA.

Indiana University of Pennsylvania, USA.

出版信息

Nurs Ethics. 2019 Aug;26(5):1505-1517. doi: 10.1177/0969733018767248. Epub 2018 Apr 29.

Abstract

Members of the Ethics and Public Policy Committee of the International Society of Nurses in Genetics prepared this article to assist nurses in interpreting the American Nurses Association (2015) Code of Ethics for Nurses with Interpretive Statements (Code) within the context of genetics/genomics. The Code explicates the nursing profession's norms and responsibilities in managing ethical issues. The nearly ubiquitous application of genetic/genomic technologies in healthcare poses unique ethical challenges for nursing. Therefore, authors conducted literature searches that drew from various professional resources to elucidate implications of the code in genetic/genomic nursing practice, education, research, and public policy. We contend that the revised Code coupled with the application of genomic technologies to healthcare creates moral obligations for nurses to continually refresh their knowledge and capacities to translate genetic/genomic research into evidence-based practice, assure the ethical conduct of scientific inquiry, and continually develop or revise national/international guidelines that protect the rights of individuals and populations within the context of genetics/genomics. Thus, nurses have an ethical responsibility to remain knowledgeable about advances in genetics/genomics and incorporate emergent evidence into their work.

摘要

国际护士遗传学会伦理与公共政策委员会成员撰写了这篇文章,旨在帮助护士在遗传学/基因组学背景下解释美国护士协会(2015 年)护士伦理准则及诠释声明(准则)。该准则详细说明了护理专业在管理伦理问题方面的规范和责任。基因/基因组技术在医疗保健中的广泛应用给护理带来了独特的伦理挑战。因此,作者进行了文献检索,从各种专业资源中汲取了相关内容,以阐明准则在遗传/基因组学护理实践、教育、研究和公共政策中的应用。我们认为,修订后的准则加上将基因组技术应用于医疗保健,为护士创造了道德义务,要求他们不断更新知识和能力,将遗传/基因组研究转化为基于证据的实践,确保科学研究的道德行为,并不断制定或修订国家/国际准则,以保护个体和人群在遗传学/基因组学背景下的权利。因此,护士有责任了解遗传学/基因组学的最新进展,并将新出现的证据纳入其工作中。

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