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描述瑞士脊髓损伤患者的功能状况:一种图形建模方法。

Describing Functioning in People Living With Spinal Cord Injury in Switzerland: A Graphical Modeling Approach.

机构信息

Swiss Paraplegic Research, Nottwil, Switzerland; Department of Health Sciences and Health Policy, University of Lucerne, Lucerne, Switzerland.

Swiss Paraplegic Research, Nottwil, Switzerland; Department of Health Sciences and Health Policy, University of Lucerne, Lucerne, Switzerland.

出版信息

Arch Phys Med Rehabil. 2018 Oct;99(10):1965-1981. doi: 10.1016/j.apmr.2018.04.015. Epub 2018 May 9.

Abstract

OBJECTIVE

To describe functioning in people living with spinal cord injuries (SCI) in Switzerland.

DESIGN

Secondary analysis of cross-sectional survey data.

SETTING

Community, Switzerland.

PARTICIPANTS

Individuals (N=1549) 16 years of age or older with a history of traumatic or nontraumatic SCI and permanently residing in Switzerland.

INTERVENTIONS

Not applicable.

MAIN OUTCOME MEASURES

Functioning was operationalized through 4 domains: (1) impairments in body functions; (2) impairments in mental functions; (3) independence in performing activities; and (4) performance problems in participation.

RESULTS

Univariate analysis indicated a high prevalence of problems in 5 areas: (1) housework; (2) climbing stairs; (3) tiredness; (4) spasticity; and (5) chronic pain. Graphical modeling showed a strong association among the four domains of functioning. Moreover, we found that the differences in the dependence structures were significant between the paraplegia SCI population and the tetraplegia SCI population.

CONCLUSIONS

This study is a first study in the epidemiology of functioning of people living with SCI in Switzerland. Using univariate and graphical modeling approaches, we proposed an empirical foundation for developing hypotheses on functioning in each domain and category that could inform health systems on people's health needs.

摘要

目的

描述瑞士脊髓损伤(SCI)患者的功能状况。

设计

横断面调查数据的二次分析。

地点

瑞士社区。

参与者

16 岁及以上有创伤性或非创伤性 SCI 病史且永久性居住在瑞士的个体。

干预措施

不适用。

主要观察指标

功能通过 4 个领域来操作化:(1)身体功能障碍;(2)精神功能障碍;(3)活动独立能力;(4)参与活动的表现问题。

结果

单变量分析表明,5 个领域存在较高的问题发生率:(1)家务;(2)爬楼梯;(3)疲劳;(4)痉挛;(5)慢性疼痛。图形建模显示功能的四个领域之间存在很强的关联。此外,我们发现截瘫 SCI 人群和四肢瘫 SCI 人群在依赖结构上存在显著差异。

结论

本研究是瑞士 SCI 患者功能流行病学的首次研究。通过单变量和图形建模方法,我们为每个领域和类别中的功能假设提供了实证基础,这可以为卫生系统提供有关人们健康需求的信息。

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