Royal Marsden Hospital, Institute of Cancer Research, London, UK.
Department of Medical Oncology, Gustave Roussy, 114 Rue Edouard Vaillant, 94805 Villejuif, France.
Future Oncol. 2018 May;14(10s):51-62. doi: 10.2217/fon-2018-0077.
Assessment of health-related quality of life (HRQoL) is essential for holistic care. Greater efforts are required to incorporate HRQoL measures into clinical trials and daily practice. Considerable HRQoL data are available for localized soft tissue sarcomas (STS), particularly in the orthopedic setting. In future, HRQoL is expected to become increasingly important in the evaluation of palliative therapy in advanced STS. A patient-centric approach is advocated for STS management. Greater awareness of STS by nonspecialist clinicians, and timely referral to specialized sarcoma reference centers, is crucial for patient welfare. The patient is central to shared decision-making during consultations and during case review in tumor boards. The management approach to STS should be collaborative, involving a multidisciplinary team, multiple centers and patient advocacy groups.
健康相关生活质量（HRQoL）的评估对于整体护理至关重要。需要更大的努力将 HRQoL 措施纳入临床试验和日常实践中。局部软组织肉瘤（STS）有大量的 HRQoL 数据，特别是在骨科环境中。未来，HRQoL 在晚期 STS 姑息治疗的评估中预计将变得越来越重要。STS 管理提倡以患者为中心的方法。非专科临床医生对 STS 的认识提高，以及及时转介到专门的肉瘤参考中心，对患者的福利至关重要。患者是咨询过程中和肿瘤委员会病例审查中共同决策的核心。STS 的管理方法应该是协作的，涉及多学科团队、多个中心和患者倡导团体。
