Ambrosio Leire, Portillo Mari Carmen
Departamento de Enfermería de la Persona Adulta. Facultad de Enfermería. Universidad de Navarra. C/ Irunlarrea s/n 31008 Pamplona, Navarra, España.
Faculty of Health Sciences. University of Southampton. Building 67, Highfield Campus University Road S017 1BJ Southampton, Reino Unido.
Enferm Clin (Engl Ed). 2018 May 16. doi: 10.1016/j.enfcli.2018.04.003.
To analyse the currently available instruments to assess living with a chronic illness and related aspects.
A review of the evidence was made using the databases: Medline, CINHAL, PsycINFO, Cochrane Library, Embase and Cuiden. The criteria that limited the search were: the language, English and / or Spanish and studies carried out in an adult population. Years of article publication were not used as a limit.
A total of 16 instruments were identified and analysed that apparently measured the concept of living with a chronic illness and/or related aspects. According to the name of the instrument, four seemed to evaluate the concept of living with a chronic illness while the rest of the instruments evaluated aspects intrinsically related to the concept of "living with", such as attributes or the meaning of living with a chronic illness.
Different instruments were identified to evaluate daily living for the chronically ill patient, as well as related aspects. According to this review, further validation studies are required in other populations and/or contexts in order to achieve valid and reliable instruments that could be used in clinical practice.
分析目前可用于评估慢性病患者生活状况及相关方面的工具。
通过检索以下数据库对证据进行综述：医学文献数据库（Medline）、护理学与健康领域数据库（CINHAL）、心理学文摘数据库（PsycINFO）、考科蓝图书馆（Cochrane Library）、荷兰医学文摘数据库（Embase）和护理学数据库（Cuiden）。检索限制条件为：语言为英语和/或西班牙语，研究对象为成年人群。文章发表年份不作为限制条件。
共识别并分析了16种工具，这些工具似乎测量了慢性病患者生活状况及/或相关方面的概念。根据工具名称，其中四种似乎评估了慢性病患者生活状况的概念，而其余工具评估了与“慢性病患者生活状况”概念内在相关的方面，如慢性病患者生活状况的属性或意义。
识别出了不同的工具来评估慢性病患者的日常生活及相关方面。根据本综述，需要在其他人群和/或环境中进行进一步的验证研究，以获得可用于临床实践的有效且可靠的工具。
