National Epidemiology Centre, Carlos III Institute of Health, Madrid, Spain.
Network Center for Biomedical Research in Neurodegenerative Diseases (CIBERNED), Madrid, Spain.
Health Expect. 2021 Dec;24(6):2065-2077. doi: 10.1111/hex.13351. Epub 2021 Sep 7.
The Living with Chronic Illness (LW-CI) Scale is a comprehensive patient-reported outcome measure that evaluates the complex process of living with long-term conditions.
This study aimed to analyse the psychometric properties of the LW-CI scale according to the classic test theory and the Rasch model among individuals living with different long-term conditions.
This was an observational, international and cross-sectional study.
A total of 2753 people from six Spanish-speaking countries living with type 2 diabetes mellitus, chronic obstructive pulmonary disease, chronic heart failure, Parkinson's disease, hypertension and osteoarthritis were included. The acceptability, internal consistency and validity of the LW-CI scale were analysed using the classical test theory, and fit to the model, unidimensionality, person separation index, item local independency and differential item functioning were analysed using the Rasch model.
Cronbach's α for the LW-CI scale was .91, and correlation values for all domains of the LW-CI scale ranged from .62 to .68, except for Domain 1, which showed correlation coefficients less than .30. The LW-CI domains showed a good fit to the Rasch model, with unidimensionality, item local independency and moderate reliability providing scores in a true interval scale. Except for two items, the LW-CI scale was free from bias by long-term condition type.
After some adjustments, the LW-CI scale is a reliable and valid measure showing a good fit to the Rasch model and is ready for use in research and clinical practice. Future implementation studies are suggested.
Patient and public involvement was conducted before this validation study - in the pilot study phase.
《慢性病患者生活量表》(LW-CI)是一种全面的患者报告结局测量工具,用于评估长期疾病患者的生活的复杂过程。
本研究旨在根据经典测试理论和 Rasch 模型分析不同长期疾病患者的 LW-CI 量表的心理测量特性。
这是一项观察性、国际性和横断面研究。
共有来自六个西班牙语国家的 2753 名 2 型糖尿病、慢性阻塞性肺疾病、慢性心力衰竭、帕金森病、高血压和骨关节炎患者参与了这项研究。使用经典测试理论分析 LW-CI 量表的可接受性、内部一致性和有效性,并使用 Rasch 模型分析模型拟合、单维性、个体分离指数、项目局部独立性和差异项目功能。
LW-CI 量表的 Cronbach's α 为.91,LW-CI 量表所有领域的相关值范围在.62 到.68 之间,除了第一领域,其相关系数小于.30。LW-CI 领域与 Rasch 模型拟合良好,具有单维性、项目局部独立性和中等可靠性,提供了真正的区间量表评分。除了两个项目外,LW-CI 量表不受长期疾病类型的影响。
经过一些调整,LW-CI 量表是一种可靠和有效的测量工具,与 Rasch 模型拟合良好,已准备好在研究和临床实践中使用。建议进行未来的实施研究。
在这项验证研究之前进行了患者和公众参与——在试点研究阶段。