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一项旨在减轻化疗期间症状负担的护理干预措施(CHEMO-SUPPORT):关于患者体验的混合方法研究

A nursing intervention aimed at reducing symptom burden during chemotherapy (CHEMO-SUPPORT): A mixed-methods study of the patient experience.

作者信息

Coolbrandt Annemarie, Milisen Koen, Wildiers Hans, Aertgeerts Bert, van Achterberg Theo, Van der Elst Elisa, Dierckx de Casterlé Bernadette

机构信息

Department of Oncology Nursing, University Hospitals Leuven, Leuven, Belgium; Department of Public Health and Primary Care, Academic Center for Nursing and Midwifery, KU Leuven, Leuven, Belgium.

Department of Public Health and Primary Care, Academic Center for Nursing and Midwifery, KU Leuven, Leuven, Belgium.

出版信息

Eur J Oncol Nurs. 2018 Jun;34:35-41. doi: 10.1016/j.ejon.2018.03.002. Epub 2018 Mar 8.

DOI:10.1016/j.ejon.2018.03.002
PMID:29784136
Abstract

PURPOSE

CHEMO-SUPPORT is a nursing intervention that supports cancer patients in dealing with chemotherapy-related symptoms at home. The aims of the current study were (1) to determine how patients had experienced the intervention, and (2) to identify and better understand the mechanisms underlying CHEMO-SUPPORT's effects, its essential elements and possible pitfalls.

METHODS

All 71 patients who had received the CHEMO-SUPPORT intervention completed a questionnaire, asking their opinion on the helpfulness, strengths, and weaknesses of the individual components of the intervention. Semi-structured interviews were also conducted with a purposeful selection of 9 of the 71 patients to get a deeper understanding of the patient experience.

RESULTS

Nurses' caring support, combined with competent care, gave patients a sense of reassurance and made them feel (better) able to deal with their symptoms. The importance patients ascribed to the intervention varied according to the individual symptom experience and coping mechanisms of the patients, and by their experience with regular care. Patients rated the informational brochure component of the intervention most helpful. It served as their 'companion', offering support and expert advice at home. Patients felt that a strength of the brochure was the support they received from the quotes of fellow patients.

CONCLUSIONS

The CHEMO-SUPPORT intervention made patients feel more reassured and empowered in dealing with symptoms at home. That the CHEMO-SUPPORT experience was influenced by personal and contextual factors highlights the importance of tailoring the intervention to each patient, as well as improving supportive and competent symptom-management support in daily oncology care.

摘要

目的

化疗支持是一种护理干预措施,旨在帮助癌症患者在家中应对化疗相关症状。本研究的目的是:(1)确定患者对该干预措施的体验;(2)识别并更好地理解化疗支持效果的潜在机制、其基本要素和可能存在的问题。

方法

所有接受化疗支持干预的71名患者均完成了一份问卷,询问他们对干预措施各个组成部分的帮助程度、优点和缺点的看法。还对71名患者中有目的地挑选出的9名患者进行了半结构化访谈,以更深入地了解患者的体验。

结果

护士的关怀支持与专业护理相结合,给患者带来了安心感,使他们感觉(更)有能力应对自身症状。患者对该干预措施的重视程度因个体症状体验、应对机制以及他们接受常规护理的经历而异。患者认为干预措施中的信息手册部分最有帮助。它就像他们的“伙伴”,在家中提供支持和专业建议。患者觉得手册的一个优点是他们从其他患者的引述中获得的支持。

结论

化疗支持干预使患者在应对家中症状时感到更安心、更有能力。化疗支持体验受个人和情境因素影响,这凸显了针对每位患者量身定制干预措施的重要性,以及在日常肿瘤护理中改善支持性和专业性症状管理支持的重要性。

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