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电子患者报告结局在癌症生存者照护中的采集和应用述评,重点关注症状监测。

A Narrative Review on the Collection and Use of Electronic Patient-Reported Outcomes in Cancer Survivorship Care with Emphasis on Symptom Monitoring.

机构信息

Department of Research and Development, Netherlands Comprehensive Cancer Organization (IKNL), 3511 DT Utrecht, The Netherlands.

CoRPS-Center of Research on Psychological Disorders and Somatic Diseases, Department of Medical and Clinical Psychology, Tilburg University, 5037 AB Tilburg, The Netherlands.

出版信息

Curr Oncol. 2022 Jun 17;29(6):4370-4385. doi: 10.3390/curroncol29060349.

Abstract

Electronic patient-reported outcome (ePRO) applications promise great added value for improving symptom management and health-related quality of life. The aim of this narrative review is to describe the collection and use of ePROs for cancer survivorship care, with an emphasis on ePRO-symptom monitoring. It offers many different perspectives from research settings, while current implementation in routine care is ongoing. ePRO collection optimizes survivorship care by providing insight into the patients' well-being and prioritizing their unmet needs during the whole trajectory from diagnosis to end-of-life. ePRO-symptom monitoring can contribute to timely health risk detection and subsequently allow earlier intervention. Detection is optimized by automatically generated alerts that vary from simple to complex and multilayered. Using ePRO-symptoms during in-hospital consultation enhances the patients' conversation with the health care provider before making informed decisions about treatments, other interventions, or self-management. ePRO(-symptoms) entail specific implementation issues and complementary ethics considerations. The latter is due to privacy concerns, digital divide, and scarcity of adequately representative data for particular groups of patients.

摘要

电子患者报告结局(ePRO)应用程序有望在改善症状管理和健康相关生活质量方面带来巨大的附加价值。本叙述性综述旨在描述癌症生存者护理中 ePRO 的采集和使用,重点是 ePRO-症状监测。它提供了来自研究环境的许多不同视角,而当前在常规护理中的实施正在进行中。ePRO 的采集通过深入了解患者的幸福感并在从诊断到生命终结的整个轨迹中优先考虑他们未满足的需求,从而优化了生存者护理。ePRO-症状监测有助于及时发现健康风险,并随后进行早期干预。通过从简单到复杂和多层次的自动生成警报来优化检测。在住院咨询期间使用 ePRO-症状可以增强患者与医疗保健提供者之间的对话,以便在做出关于治疗、其他干预措施或自我管理的知情决策之前。ePRO(-症状)涉及特定的实施问题和补充的道德考虑。后者是由于隐私问题、数字鸿沟以及特定患者群体的代表性数据不足。

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