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儿童对母亲乳腺癌的理解:一项定性研究。

Children's understanding of maternal breast cancer: A qualitative study.

作者信息

Huang Xiaoyan, O'Connor Margaret, Hu Yan, Gao Hongyun, Lee Susan

机构信息

School of Nursing, Fudan University, Shanghai, China; School of Nursing and Midwifery, Monash University, Frankston, Australia.

School of Nursing and Midwifery, Monash University, Frankston, Australia.

出版信息

Eur J Oncol Nurs. 2018 Jun;34:8-14. doi: 10.1016/j.ejon.2018.02.006. Epub 2018 Mar 7.

Abstract

PURPOSE

To explore how children understand their mother's diagnosis of and treatment for breast cancer.

METHOD

Interpretive description was adopted as the methodology in this study. Eight children aged 8-18 years old, whose mother has been diagnosed with non-terminal breast cancer, were interviewed individually and six of them drew a picture to express their understanding of maternal breast cancer.

RESULTS

Four themes were identified in this study: "the cancer word is scary" - children's understanding of cancer; "scars and tubes" - children's understanding of surgery; "hair loss" - children's understanding of chemotherapy, and "I can't explain it" - children's understanding of other treatments. Children's understanding of maternal breast cancer and its treatment was relatively realistic, although sometimes inaccurate.

CONCLUSIONS

Individual evaluation and appropriate explanation is significant to further children's understanding of their mother's illness. Future studies with larger sample size are needed to explore the understanding for children of different ages, in order to provide specific help for these children.

摘要

目的

探讨儿童如何理解其母亲乳腺癌的诊断和治疗。

方法

本研究采用解释性描述方法。对8名年龄在8至18岁之间、其母亲被诊断为非晚期乳腺癌的儿童进行了单独访谈,其中6名儿童绘制了一幅画来表达他们对母亲乳腺癌的理解。

结果

本研究确定了四个主题:“癌症这个词很可怕”——儿童对癌症的理解;“疤痕和管子”——儿童对手术的理解;“脱发”——儿童对化疗的理解,以及“我无法解释”——儿童对其他治疗的理解。儿童对母亲乳腺癌及其治疗的理解相对现实,尽管有时不准确。

结论

个体评估和适当解释对于增进儿童对母亲疾病的理解具有重要意义。需要开展更大样本量的未来研究,以探索不同年龄段儿童的理解情况,从而为这些儿童提供具体帮助。

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