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母亲患乳腺癌时中国儿童的经历:来自母亲和孩子的声音

Chinese Children's Experience When the Mother Has Breast Cancer: Voices From Mothers and Children.

作者信息

Huang Xiaoyan, Lee Susan, Hu Yan, Gao Hongyun, O'Connor Margaret

机构信息

Author Affiliations: School of Nursing, Fudan University, Shanghai, China (Drs Huang and Hu) School of Nursing and Midwifery, Monash University, Frankston, Australia (Drs Huang, Lee, and O'Connor); and Psychological Medicine Department, Children's Hospital of Fudan University, Shanghai, China (Dr Gao).

出版信息

Cancer Nurs. 2020 Mar/Apr;43(2):158-166. doi: 10.1097/NCC.0000000000000695.

Abstract

BACKGROUND

A large number of women with breast cancer may have children younger than 18 years. When the mother has breast cancer, children may experience various concerns.

OBJECTIVE

The aim of this study was to explore Chinese children's experience when confronted with maternal breast cancer from the perspectives of both children and their mothers.

METHODS

Forty mothers with breast cancer were interviewed individually to talk about the experience of their children. In addition, 8 children aged 8 to 18 years were interviewed directly to share their experience, and 6 of them drew pictures to express their feelings.

RESULTS

Six themes were identified: "They were discussing it"-being informed of maternal breast cancer; "What about me if my mother dies?"-children's feelings and concerns; "Grandmother took care of me"-impact on daily life; "Mother did not smile anymore"-impact on mother and family; "I am happy to help"-pleasing their mother; and "I did not tell others"-hiding emotions.

CONCLUSIONS

When their mother was diagnosed with breast cancer, Chinese children experienced various negative feelings, although their daily life was not profoundly affected because of grandparents' help. However, children's concerns may be underestimated by their mothers. Fathers and grandparents also played an important role in the interactions with children.

IMPLICATIONS FOR PRACTICE

Mothers in China need to understand their children's reactions in order to help them cope with the illness. Children's experiences should be further explored. The understanding of children from the perspectives of fathers and grandparents also requires further research.

摘要

背景

大量乳腺癌女性可能育有未满18岁的子女。当母亲患有乳腺癌时,孩子可能会有各种担忧。

目的

本研究旨在从孩子及其母亲的角度探索中国儿童面对母亲乳腺癌时的经历。

方法

对40位乳腺癌母亲进行单独访谈,了解她们孩子的经历。此外,直接访谈了8名8至18岁的孩子,让他们分享自己的经历,其中6人还通过画画来表达感受。

结果

确定了六个主题:“他们在讨论这件事”——得知母亲患乳腺癌;“如果我妈妈死了我怎么办?”——孩子的感受和担忧;“奶奶照顾我”——对日常生活的影响;“妈妈不再笑了”——对母亲和家庭的影响;“我很高兴能帮忙”——取悦母亲;以及“我没告诉别人”——隐藏情绪。

结论

当母亲被诊断出患有乳腺癌时,中国儿童会经历各种负面情绪,尽管由于祖父母的帮助,他们的日常生活并未受到严重影响。然而,母亲可能低估了孩子的担忧。父亲和祖父母在与孩子的互动中也发挥了重要作用。

对实践的启示

中国的母亲需要了解孩子的反应,以帮助他们应对疾病。儿童的经历应进一步探索。从父亲和祖父母的角度对儿童的理解也需要进一步研究。

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