Loyola University Maryland, Baltimore, Maryland.
Medical College of Wisconsin, Division of General Internal Medicine, Milwaukee, Wisconsin.
Diabetes Educ. 2018 Jun;44(3):249-259. doi: 10.1177/0145721718770767.
Purpose The purpose of the study was to describe the perceptions of family members (FM) and people with diabetes (PWD) regarding the frequency and helpfulness of FM support for PWD, including differences among US ethnic groups. Methods The US 2nd Diabetes Attitudes, Wishes and Needs (DAWN2) substudy was a survey of independent samples of 238 adult FM and 540 adult PWD. Outcome measures included ratings by FM and PWD of the frequency and perceived helpfulness of 7 FM support behaviors and composite scores for frequency and helpfulness. Results Ratings of individual FM support behaviors were strongly correlated between FM and PWD but significantly different among behaviors. FM and PWD reported most frequent support for listening, assisting, and doing activities with PWD and reporting PWD was doing poorly least frequently. Both groups reported listening, assisting, and reporting PWD was doing well as most helpful; reporting PWD was doing poorly was least helpful. PWD rated support and helpfulness of most behaviors lower than FM. Composite measures of support frequency and helpfulness were strongly correlated for both FM and PWD. Ethnic minority PWD and FM reported most support behaviors as more frequent and more helpful than non-Hispanic white Americans. Conclusions FM more frequently engage in the support behaviors they view as most helpful, but PWD perceive support to be less frequent and less helpful than FM. FM support differs across ethnic groups, with ethnic minorities reporting higher support frequency and helpfulness. Diabetes care providers should consider ethnic group differences in FM support for PWD.
目的 本研究旨在描述家庭成员(FM)和糖尿病患者(PWD)对 FM 支持 PWD 的频率和有效性的看法,包括美国不同族裔群体之间的差异。
方法 美国 2 型糖尿病态度、愿望和需求(DAWN2)子研究是对 238 名成年 FM 和 540 名成年 PWD 的独立样本进行的调查。主要结果包括 FM 和 PWD 对 7 种 FM 支持行为的频率和感知有效性的评分,以及频率和有效性的综合评分。
结果 FM 和 PWD 对个别 FM 支持行为的评分之间存在很强的相关性,但行为之间存在显著差异。FM 和 PWD 报告最频繁的支持行为是倾听、协助和与 PWD 一起活动,而报告 PWD 表现最差的情况最不频繁。两组均报告倾听、协助和报告 PWD 表现良好最有帮助;报告 PWD 表现不佳最无帮助。PWD 对大多数行为的支持和有效性评分均低于 FM。FM 和 PWD 的支持频率和有效性综合指标之间具有很强的相关性。少数民族 PWD 和 FM 报告的大多数支持行为比非西班牙裔白种美国人更频繁和更有帮助。
结论 FM 更频繁地参与他们认为最有帮助的支持行为,但 PWD 认为支持的频率和有效性低于 FM。FM 支持因族裔群体而异,少数民族报告的支持频率和有效性更高。糖尿病护理提供者应考虑 FM 对 PWD 的支持在族裔群体方面的差异。