Stepney Melissa, Kirkpatrick Susan, Locock Louise, Prinjha Suman, Ryan Sara
Nuffield Department of Primary Care Health Sciences, University of Oxford, Oxford, UK.
Health Services Research Unit, University of Aberdeen, Aberdeen, UK.
Sociol Health Illn. 2018 Sep;40(7):1186-1199. doi: 10.1111/1467-9566.12754. Epub 2018 May 22.
The sense of freedom and independence that being able to drive generates may be taken for granted by many until it is threatened by illness. Drawing on the 'mobility turn' in social sciences that emphasises the social and emotional significance of the car (Sheller and Urry , ), this article presents secondary analysis of narratives of driving and its significance across four neurological conditions (epilepsy, Parkinson's disease, transient ischaemic attack and motor neurone disease). Taking an interactionist approach we explore how the withdrawal of a driving licence can represent not just a practical and emotional loss of independence, but also loss of enjoyment; of a sense and feeling of 'normal' adulthood and social participation; and of an identity (in some cases gendered) of strength and power. Conversely the ability to keep driving can maintain an unbroken thread of narrative, for example enabling people with speech difficulties to feel and look normal behind the wheel. Moments of pleasure and normality illuminate the importance of examining the micro-strands of disruption illness can cause.
能够开车所带来的自由感和独立感，在受到疾病威胁之前，可能会被许多人视为理所当然。借鉴社会科学中的“流动性转向”，该转向强调汽车的社会和情感意义（谢勒和厄里，[具体年份未给出]），本文对四种神经系统疾病（癫痫、帕金森病、短暂性脑缺血发作和运动神经元病）患者关于驾驶及其意义的叙述进行了二次分析。采用互动主义方法，我们探讨吊销驾驶执照如何不仅代表着实际和情感上独立性的丧失，还意味着享受的丧失；“正常”成年和社会参与感及感受的丧失；以及力量和权力身份（在某些情况下具有性别特征）的丧失。相反，能够继续开车可以维持叙述的连贯性，例如使有语言障碍的人在开车时感觉和看起来正常。愉悦和正常的时刻凸显了审视疾病可能造成的细微干扰线索的重要性。
