癫痫患者在就业问题上所感受到的社会耻辱感。
The Perceived Social Stigma of People with Epilepsy with regard to the Question of Employability.
作者信息
de Souza Jéssica Lopes, Faiola Aline Scardoeli, Miziara Carmen Silvia Molleis Galego, de Manreza Maria Luiza Giraldes
机构信息
Department of Legal Medicine, ABC Faculty of Medicine, Medical School Foundation, Sao Paulo, SP, Brazil.
Department of Neurology, Hospital das Clínicas da Faculdade de Medicina da Universidade de São Paulo, São Paulo, SP, Brazil.
出版信息
Neurol Res Int. 2018 May 13;2018:4140508. doi: 10.1155/2018/4140508. eCollection 2018.
OBJECTIVE
To evaluate the perceived social stigma of people with epilepsy with regard to the question of employability.
METHODS
A structured questionnaire was given to two groups of people with chronic diseases: those with epilepsy (study group) and those with heart disease (control group). The questions concerned employability.
RESULTS
Having epilepsy was more strongly associated with higher unemployment rates ( < 0.0001); job layoffs ( = 0.001); being unfit to work ( < 0.0001); feeling shame for having the disease ( = 0.014); absence of partners ( = 0.026); and depression ( = 0.004). The tendency to hide their disease from their employers was similar for the two groups.
CONCLUSION
The age discrepancy between groups was an important limiting factor of this study. However, despite the limited number of participants and the age difference between the groups, there is no impediment in stating that people with epilepsy show high rates of unemployment, depression, and stigma.
目的
评估癫痫患者在就业问题上所感受到的社会耻辱感。
方法
向两组慢性病患者发放结构化问卷：癫痫患者（研究组）和心脏病患者（对照组）。问题涉及就业能力。
结果
患有癫痫与较高的失业率（<0.0001）、失业（=0.001）、不适合工作（<0.0001）、因患病而感到羞耻（=0.014）、没有伴侣（=0.026）以及抑郁（=0.004）的关联更为紧密。两组向雇主隐瞒病情的倾向相似。
结论
两组之间的年龄差异是本研究的一个重要限制因素。然而，尽管参与者数量有限且两组之间存在年龄差异，但仍可以指出癫痫患者存在高失业率、抑郁和耻辱感。
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