Borgeat Morgane, Korff Simona, Wildhaber Barbara E
Department of Pediatrics, University Hospitals of Geneva, Geneva, Switzerland.
Division of Paediatric Surgery, University Center of Paediatric Surgery of Western Switzerland, University Hospitals of Geneva, Geneva, Switzerland.
BMJ Paediatr Open. 2018 May 29;2(1):e000269. doi: 10.1136/bmjpo-2018-000269. eCollection 2018.
Biliary atresia can easily be screened using a stool colour card (SCC) and has shown to significantly reduce time to diagnosis, improving children's outcome. Despite the general approval of the clinical usefulness of the SCC, physicians remain reluctant: it might unnecessarily worry parents. This study aimed to analyse the parental reaction to this screening method and if it evokes parental stress.
A semistructured questionnaire was sent to parents with one or more healthy child to inquire about reactions on receipt and use of the SCC.
109/256 questionnaires were returned and evaluated (43%). 107/107 parents considered the SCC as helpful, a simple screening method and easy to use (100%). 26/43 were reassured when receiving the SCC (60%), 2 were worried (5%) and 9 had no particular feelings (21%). In 41/49, emotions experienced during its use were positive or neutral (84%), and 3 were worried (6%). In 41/50, the discussion with the paediatrician about stool colour-linked pathologies was neutral (82%), and 9 felt uneasy (18%).
A vast majority of parents appreciate the SCC. It creates uneasiness in a minority of parents. Our results are encouraging and argue in favour of implementing the regular distribution of the SCC in antenatal, postnatal and newborn infant clinics.
可使用粪便颜色卡（SCC）轻松筛查胆道闭锁，且已证明其能显著缩短诊断时间，改善儿童预后。尽管SCC的临床实用性已得到普遍认可，但医生们仍有所顾虑：它可能会不必要地让家长担心。本研究旨在分析家长对这种筛查方法的反应以及它是否会引起家长的压力。
向有一个或多个健康孩子的家长发送一份半结构化问卷，询问他们收到和使用SCC后的反应。
共收回并评估了109/256份问卷（43%）。107/107位家长认为SCC有帮助，是一种简单的筛查方法且易于使用（100%）。26/43位家长在收到SCC时感到安心（60%），2位感到担忧（5%），9位没有特别的感受（21%）。在41/49位家长中，使用SCC过程中体验到的情绪是积极或中性的（84%），3位感到担忧（6%）。在41/50位家长中，与儿科医生关于粪便颜色相关病症的讨论是中性的（82%），9位感到不安（18%）。
绝大多数家长认可SCC。它在少数家长中引起了不安。我们的结果令人鼓舞，支持在产前、产后和新生儿诊所定期发放SCC。
