Karfakis Nikos
Business School, Alexander College/University of the West of England, 2 Artas Street, Aradippou 7110, Larnaca, Cyprus.
Stud Hist Philos Biol Biomed Sci. 2018 Aug;70:20-28. doi: 10.1016/j.shpsc.2018.05.009. Epub 2018 Jun 8.
This paper argues that Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) constitutes a biopolitical problem, a scientific object which needs to be studied, classified and regulated. Assemblages of authorities, knowledges and techniques make CFS/ME subjects and shape their everyday conduct in an attempt to increase their supposed autonomy, wellbeing and health. CFS and CFS/ME identities are however made not only through government, scientific, and medical interventions but also by the patients themselves, a biosocial community who collaborates with scientists, educates itself about the intricacies of biomedicine, and contests psychiatric truth claims. CFS/ME is an illness trapped between medicine and psychology, an illness that is open to debate and therefore difficult to manage and standardise. The paper delineates different interventions by medicine, science, the state and the patients themselves and concludes that CFS/ME remains elusive, only partially standardised, in an on-going battle between all the different actors that want to define it for their own situated interests.
本文认为,慢性疲劳综合征/肌痛性脑脊髓炎(CFS/ME)构成了一个生命政治问题,是一个需要研究、分类和规范的科学对象。权威、知识和技术的集合塑造了CFS/ME患者,并塑造了他们的日常行为,试图提高他们所谓的自主性、幸福感和健康水平。然而,CFS和CFS/ME的身份不仅是通过政府、科学和医学干预形成的,也是由患者自身形成的,患者是一个生物社会群体,他们与科学家合作,自学生物医学的复杂性,并对精神病学的真相主张提出质疑。CFS/ME是一种被困在医学和心理学之间的疾病,是一种存在争议的疾病,因此难以管理和标准化。本文阐述了医学、科学、国家和患者自身的不同干预措施,并得出结论,在所有不同行为者为自身利益而定义CFS/ME的持续斗争中,CFS/ME仍然难以捉摸,只是部分标准化。