1 Fudan University, Shanghai, China.
Qual Health Res. 2018 Nov;28(13):2048-2058. doi: 10.1177/1049732318779051. Epub 2018 Jun 11.
In this study, 16 family caregivers of patients with lymphoma were interviewed on their changing perceptions of hope. The changing process starts from diagnosis to the present treatment state. We found that the changing perception of hope can be divided into three stages: the stage of generalized hope focusing merely on treatment and passive hope focusing on harm-avoidance, the stage of specified hope and active hope aiming at comfort-seeking, and the stage of multifaceted hope. Family caregivers' understanding of the past experience of and new information on the disease are the foundation of the perception of hope. The perception of hope in cancer patients' family caregivers develops from "therapeutic hope" to "psychosocial hope," shifting from "consequential hope" to "procedural hope."
在这项研究中，我们采访了 16 名淋巴瘤患者的家庭照顾者，了解他们对希望的认知变化。变化过程从诊断开始，一直持续到目前的治疗状态。我们发现，希望认知的变化可以分为三个阶段：仅关注治疗的一般性希望和关注回避伤害的被动希望阶段，关注寻求安慰的特定希望和积极希望阶段，以及多方面希望阶段。家庭照顾者对疾病过去经历和新信息的理解是希望认知的基础。癌症患者家庭照顾者的希望认知从“治疗性希望”发展为“心理社会希望”，从“结果性希望”转变为“程序性希望”。
