Han Jung-Hee, Han Song-Hee, Lee Myo-Suk, Kwon Hye-Jin, Choe Kwisoon
Author Affiliations: Department of Nursing, Chung-Ang University, Seoul, Republic of Korea.
Cancer Nurs. 2016 May-Jun;39(3):E49-55. doi: 10.1097/NCC.0000000000000285.
Female patients with cancer depend on loved ones; thus, family support is pivotal to assist patients in successfully adjusting to life with treatment routines.
Our study explored the experiences of primary caregivers who provide care and support for female family members with cancer.
This study used a qualitative phenomenological research approach. Interviews and journaling about the caregiving experience were conducted with the family members of female cancer patients-6 spouses, 11 daughters, 1 son, and 1 younger sister. Data analysis involved Giorgi's 3-step phenomenological analysis method.
The central theme of the primary caregivers' supportive care for their female family member with cancer was "being with" her. This was composed of the following themes: "being there for her via efforts," "living through feelings of guilt and anxiety," and "lessons learned from cancer in the family."
This study reveals an integrated picture of family caregivers' supportive caring experiences. By providing both positive and negative aspects of the caregiving experience, the findings in this study will provide a theoretical foundation to develop more successful support programs for family caregivers of female patients with cancer.
Family-oriented education programs need to be developed to include both the family and the patient in the long journey of cancer. The family caregivers' feelings of guilt regarding the cause of the illness and feelings of anxiety about the uncertainty of the illness should be assessed and managed during the course of the patients' treatment and care.
患有癌症的女性患者依赖亲人;因此,家庭支持对于帮助患者成功适应治疗生活至关重要。
我们的研究探讨了为患癌女性家庭成员提供照顾和支持的主要照顾者的经历。
本研究采用质性现象学研究方法。对女性癌症患者的家庭成员——6名配偶、11名女儿、1名儿子和1名妹妹——进行了关于照顾经历的访谈和记录。数据分析采用 Giorgi 的三步现象学分析方法。
主要照顾者对患癌女性家庭成员的支持性护理的核心主题是“陪伴”她。这由以下主题组成:“通过努力陪伴她”、“经历内疚和焦虑的情绪”以及“从家庭中的癌症中吸取的教训”。
本研究揭示了家庭照顾者支持性护理经历的全貌。通过提供照顾经历的积极和消极方面,本研究的结果将为为患癌女性患者的家庭照顾者制定更成功的支持计划提供理论基础。
需要制定以家庭为导向的教育计划,让家庭和患者都参与到漫长的癌症治疗过程中。在患者的治疗和护理过程中,应评估并处理家庭照顾者对疾病病因的内疚感以及对疾病不确定性的焦虑感。