Petersson Christina, Fust Ramona, Hagstedt Carina, Wågström Per, Nilsdotter-Augustinsson Åsa
Department of Nursing, School of Health and Welfare, Jönköping University, Jönköping, Sweden.
Research Group at the Academy for Improvement of Health and Welfare, Futurum, Academy for Health and Care at Region Jönköping Council, Jönköping University, Jönköping, Sweden.
J Clin Nurs. 2018 Dec;27(23-24):4270-4278. doi: 10.1111/jocn.14580. Epub 2018 Jul 26.
To evaluate patient-reported experiences of facilitated subcutaneous immunoglobulin treatment in adults with primary or secondary immunodeficiency.
Decreased levels of circulating antibodies (humoral immunodeficiency) are often associated with higher infection rates which cause problems in daily living, for example, symptoms of severe and recurrent bacterial infections that may cause chronic lung diseases. For some diagnoses, treatment with immunoglobulin becomes critical and lifelong. The acceptability of administration forms is important to achieve adherence to treatment and to increase quality of life for these patients.
Convergent mixed-method approach.
A structured telephone interview with nine questions evaluated on a score scale about treatment experience, satisfaction and ancillary supplies was used, followed by open-ended questions for each item.
Prohibiting factors were revealed, exemplified by problems due to technical issues and ancillary supply issues. Promoting factors were shown by high a satisfaction according to the score-scale when combining treatment with daily life as well as increased well-being. Facilitated subcutaneous immunoglobulin treatment led to fewer treatment sessions, with a time-saving aspect also described by high scores in the item concerning longer treatment interval.
The opportunity to be given the best possible treatment plan adjusted for each patient's situation is central. Healthcare professionals should discuss the different aspects that can promote and inhibit the outcomes of treatment.
The results can help professionals to understand different factors that may impinge on the patients' everyday life when they are forced into a lifelong treatment regimen. This knowledge is also important for nurses who have a responsibility to promote health concerning patients with long-term conditions in general.
评估原发性或继发性免疫缺陷成人患者对皮下注射免疫球蛋白辅助治疗的体验报告。
循环抗体水平降低（体液免疫缺陷）通常与较高的感染率相关，这会给日常生活带来问题，例如，严重且反复的细菌感染症状可能导致慢性肺部疾病。对于某些诊断，免疫球蛋白治疗变得至关重要且需终身进行。给药形式的可接受性对于实现治疗依从性和提高这些患者的生活质量很重要。
采用聚合混合方法。
通过一个包含九个问题的结构化电话访谈，以评分量表评估治疗体验、满意度和辅助用品情况，随后针对每个项目提出开放式问题。
揭示了一些阻碍因素，例如技术问题和辅助用品问题导致的困扰。促进因素表现为将治疗与日常生活相结合时评分量表显示的高满意度以及幸福感增强。皮下注射免疫球蛋白辅助治疗减少了治疗次数，关于更长治疗间隔的项目得分较高也表明了其节省时间的方面。
根据每位患者的情况制定最佳治疗方案的机会至关重要。医疗保健专业人员应讨论可能促进和抑制治疗效果的不同方面。
这些结果可帮助专业人员了解当患者被迫接受终身治疗方案时可能影响其日常生活的不同因素。对于总体上负责促进长期疾病患者健康的护士而言，这一知识也很重要。
