Farnbach Sara, Eades Anne-Maree, Gwynn Josephine D, Glozier Nick, Hackett Maree L
The George Institute for Global Health, UNSW Sydney, Australia; School of Medicine, University of Sydney, NSW, Australia,
The George Institute for Global Health, UNSW Sydney, Australia; School of Medicine, University of Sydney, NSW, Australia; Murdoch University, Perth, Western Australia.
Public Health Res Pract. 2018 Jun 14;28(2):27451704. doi: 10.17061/phrp27451704.
Objectives and importance of study: Values and ethics: guidelines for ethical conduct in Aboriginal and Torres Strait Islander health research (Values and ethics) describes key values that should underpin Aboriginal and Torres Strait Islander (Indigenous)-focused health research. It is unclear how research teams address this document in primary health care research. We systematically review the primary health care literature focusing on Indigenous social and emotional wellbeing (SEWB) to identify how Values and ethics and community preferences for standards of behaviour (local protocols) are addressed during research.
Systematic review in accordance with PRISMA Guidelines and MOOSE Guidelines for Meta-Analyses and Systematic Reviews of Observational Studies.
We searched four databases and one Indigenous-specific website for qualitative, quantitative and mixed-method studies published since Values and ethics was implemented (2003). Included studies were conducted in primary health care services, focused on Indigenous SEWB and were conducted by research teams. Using standard data extraction forms, we identified actions taken (reported by authors or identified by us) relating to Values and ethics and local protocols.
A total of 25 studies were included. Authors of two studies explicitly mentioned the Values and ethics document, but neither reported how their actions related to the document's values. In more than half the studies, we identified at least three actions relating to the values. Some actions related to multiple values, including use of culturally sensitive research processes and involving Indigenous representatives in the research team. Local protocols were rarely reported.
Addressing Values and ethics appears to improve research projects. The academic community should focus on culturally sensitive research processes, relationship building and developing the Indigenous research workforce, to facilitate acceptable research that affects health outcomes. For Values and ethics to achieve its full impact and to improve learning between research teams, authors should be encouraged to report how the principles are addressed during research, including barriers and enablers that are encountered.
研究目的及重要性：价值观与伦理：原住民及托雷斯海峡岛民健康研究中的伦理行为指南（《价值观与伦理》）阐述了应以哪些关键价值观为聚焦于原住民及托雷斯海峡岛民（原住民）的健康研究提供支撑。尚不清楚研究团队在初级卫生保健研究中如何落实该文件。我们对聚焦于原住民社会和情感福祉（SEWB）的初级卫生保健文献进行系统综述，以确定在研究过程中如何落实《价值观与伦理》以及社区对行为标准的偏好（当地规范）。
按照PRISMA指南以及观察性研究的Meta分析和系统综述的MOOSE指南进行的系统综述。
我们在四个数据库和一个特定于原住民的网站上搜索自《价值观与伦理》实施（2003年）以来发表的定性、定量和混合方法研究。纳入的研究在初级卫生保健服务机构开展，聚焦于原住民的SEWB，且由研究团队进行。我们使用标准数据提取表，确定与《价值观与伦理》和当地规范相关的已采取行动（作者报告或我们确定的）。
共纳入25项研究。两项研究的作者明确提及了《价值观与伦理》文件，但均未报告其行动与该文件价值观的关联方式。在超过半数的研究中，我们确定了至少三项与这些价值观相关的行动。一些行动涉及多个价值观，包括使用具有文化敏感性的研究流程以及让原住民代表参与研究团队。当地规范很少被报告。
落实《价值观与伦理》似乎能改善研究项目。学术界应关注具有文化敏感性的研究流程、关系建立以及培养原住民研究人员队伍，以推动能影响健康结果的可接受研究。为使《价值观与伦理》充分发挥作用并促进研究团队之间的学习，应鼓励作者报告在研究过程中如何落实这些原则，包括所遇到的障碍和促成因素。
