Bridgman Alanna C, Eshtiaghi Panteha, Cresswell-Melville Amanda, Ramien Michele, Drucker Aaron M
1 Department of Medicine, Queen's University, Kingston, ON, Canada.
2 Faculty of Medicine, University of British Columbia, Vancouver, BC, Canada.
J Cutan Med Surg. 2018 Jul/Aug;22(4):443-444. doi: 10.1177/1203475418761859.
Although atopic dermatitis (AD) has significant impacts on quality of life, data from Canada on the subject are limited. This survey aims to assess the burden of moderate to severe AD on quality of life and disease management for pediatric patients and their caregivers in Canada.
The Eczema Society of Canada conducted an online national cross-sectional survey in English and French. We included children with self-reported moderate to severe AD. We present descriptive statistics from the survey.
Of all initial respondents (n = 658), 70% (n = 458) were children or caregivers of children who have moderate or severe AD and were therefore eligible. Among them, 27% (123/451) are managed by a dermatologist, with 71% (174/244) waiting more than 3 months to see a dermatologist. Many respondents (85%, 279/330) feel that their child's AD is not well controlled, and 27% (75/275) have difficulty obtaining treatments for their child's AD. Impaired quality of life was found in 52% of families (200/381), with most reporting sleep disturbances in both the child (70%, 253/361) and the caregiver (55%, 199/361), as well as mental health issues.
This survey demonstrates the medical and psychosocial burden of moderate to severe AD in Canadian children. Quality of life, access to care, and disease management are all areas of concern for patients and their families and warrant attention from individual clinicians and the health care system as a whole.
尽管特应性皮炎（AD）对生活质量有重大影响，但加拿大关于该主题的数据有限。本调查旨在评估中重度AD对加拿大儿科患者及其护理人员生活质量和疾病管理的负担。
加拿大湿疹协会开展了一项英法双语的全国在线横断面调查。我们纳入了自我报告为中重度AD的儿童。我们展示了该调查的描述性统计数据。
在所有初始受访者（n = 658）中，70%（n = 458）是患有中重度AD儿童的儿童或护理人员，因此符合条件。其中，27%（123/451）由皮肤科医生管理，71%（174/244）等待超过3个月才能看皮肤科医生。许多受访者（85%，279/330）认为他们孩子的AD没有得到很好的控制，27%（75/275）在为孩子获取AD治疗方面存在困难。52%的家庭（200/381）生活质量受损，大多数报告孩子（70%，253/361）和护理人员（55%，199/361）都存在睡眠障碍以及心理健康问题。
本次调查证明了加拿大儿童中重度AD的医学和社会心理负担。生活质量、获得护理的机会以及疾病管理都是患者及其家庭关注的领域，值得个体临床医生和整个医疗保健系统予以关注。
