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儿童慢性皮肤病中父母的压力与生活质量:综述

Parental Stress and Quality of Life in Chronic Childhood Dermatoses: A Review.

作者信息

Datta Debatri, Sarkar Rashmi, Podder Indrashis

机构信息

Dr. Datta is a consultant dermatologist at Oliva Skin Clinic, in Kolkata, West Bengal, India.

Dr. Sarkar is with the Department of Dermatology, LHMC and associated KSCH and SSK Hospital in New Delhi, India.

出版信息

J Clin Aesthet Dermatol. 2021 Sep;14(9 Suppl 1):S19-S23. Epub 2021 Sep 1.

Abstract

Chronic dermatoses, such as atopic dermatitis, vitiligo, and psoriasis, can affect children. Apart from impacting the pediatric patient's quality of life, these disorders can also have a profound impact on the quality of life of their parents or closest caregivers and other family members. In an effort to better understand the relationship between parental stress and chronic dermatoses in children, we reviewed the available literature, which is scarce. Data indicate that the negative impact that chronic dermasoses in children can have on their parents is often overlooked during dermatologic consultation. Increased parental/caregiver stress can contribute to poor psychological adjustment of the parent to the child, potentially leading to a decreased level of childcare. Financial burden caused by prolonged therapy may further impact the parental care of the child. We as healthcare professionals should address parental and caregiver stress and incorporate appropriate measures to ensure optimal care of children with chronic dermatoses.

摘要

慢性皮肤病,如特应性皮炎、白癜风和银屑病,会影响儿童。除了影响儿科患者的生活质量外,这些疾病还会对其父母或最亲密的照顾者以及其他家庭成员的生活质量产生深远影响。为了更好地理解父母压力与儿童慢性皮肤病之间的关系,我们查阅了现有的、数量稀少的文献。数据表明,在皮肤科会诊过程中,儿童慢性皮肤病对其父母可能产生的负面影响常常被忽视。父母/照顾者压力增加会导致父母对孩子的心理调适不佳,可能导致育儿水平下降。长期治疗造成的经济负担可能会进一步影响对孩子的父母照顾。作为医疗保健专业人员,我们应该关注父母和照顾者的压力,并采取适当措施,以确保对患有慢性皮肤病的儿童进行最佳护理。

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