Leclerc-Loiselle Jérôme, Legault Alain
Lecturer, Faculty of Nursing, Université de Montréal, Montréal, Canada.
Associate Professor, Faculty of Nursing, Université de Montréal, Montréal, Canada.
Int J Palliat Nurs. 2018 Jun 2;24(6):264-270. doi: 10.12968/ijpn.2018.24.6.264.
Even with the desire of home-based health professionals to provide supportive care, the palliative needs of people living with multiple sclerosis (MS) remain unmet.
To describe the perceptions of home-based health professionals concerning the introduction of a palliative care approach in the care trajectory of people living with advanced MS.
Based on an exploratory qualitative design, focus groups and individual interviews were conducted with nurses, occupational therapists and social workers (n=13 professionals).
A palliative care approach was described as a possibility for opening the discussion between the patient and their caregivers about their needs and desires at the end of life. The approach required professionals to be supportive and to adapt their interventions to people living with MS. However, professionals reported difficulties in introducing a palliative care approach.
Health professionals reported that they feel a palliative care approach for people living with MS is mandatory; however, they do not feel comfortable integrating it systematically into their care.
尽管居家医疗专业人员渴望提供支持性护理，但多发性硬化症（MS）患者的姑息治疗需求仍未得到满足。
描述居家医疗专业人员对在晚期MS患者护理过程中引入姑息治疗方法的看法。
基于探索性定性设计，对护士、职业治疗师和社会工作者（共13名专业人员）进行了焦点小组讨论和个人访谈。
姑息治疗方法被描述为开启患者及其护理人员关于生命末期需求和愿望讨论的一种可能性。该方法要求专业人员提供支持，并使他们的干预措施适应MS患者。然而，专业人员报告在引入姑息治疗方法方面存在困难。
医疗专业人员报告说，他们认为针对MS患者的姑息治疗方法是必要的；然而，他们对于将其系统地纳入护理工作并不感到自在。
