D'souza Nicole A, Guzder Jaswant, Hickling Frederick, Groleau Danielle
Department of Psychiatry, Division of Social and Transcultural Psychiatry, McGill University, Montreal, Canada.
CARIMENSA (Caribbean Institute of Mental Health and Substance Abuse), University of the West Indies, Kingston, Jamaica.
BMC Med Ethics. 2018 Jun 15;19(Suppl 1):50. doi: 10.1186/s12910-018-0282-5.
Despite recent developments aimed at creating international guidelines for ethical global health research, critical disconnections remain between how global health research is conducted in the field and the institutional ethics frameworks intended to guide research practice.
In this paper we attempt to map out the ethical tensions likely to arise in global health fieldwork as researchers negotiate the challenges of balancing ethics committees' rules and bureaucracies with actual fieldwork processes in local contexts. Drawing from our research experiences with an implementation and evaluation project in Jamaica, we argue that ethical research is produced through negotiated spaces and reflexivity practices that are centred on relationships between researchers and study participants and which critically examine issues of positionality and power that emerge at multiple levels. In doing so, we position ethical research practice in global health as a dialectical movement between the spoken and unspoken, or, more generally, between operationalized rules and the embodied relational understanding of persons. Global health research ethics should be premised not upon passive accordance with existing guidelines on ethical conduct, but on tactile modes of knowing that rely upon being engaged with, and responsive to, research participants. Rather than focusing on the operationalization of ethical practice through forms and procedures, it is crucial that researchers recognize that each ethical dilemma encountered during fieldwork is unique and rooted in social contexts, interpersonal relationships, and personal narratives.
尽管近期旨在制定全球卫生研究伦理国际准则的工作取得了进展,但全球卫生研究在实地的开展方式与旨在指导研究实践的机构伦理框架之间仍存在严重脱节。
在本文中,我们试图梳理全球卫生实地工作中可能出现的伦理紧张关系,因为研究人员在当地环境中应对平衡伦理委员会规则和官僚程序与实际实地工作过程的挑战。借鉴我们在牙买加一个实施和评估项目中的研究经验,我们认为,伦理研究是通过协商空间和反思性实践产生的,这些实践以研究人员与研究参与者之间的关系为中心,并批判性地审视在多个层面出现的位置性和权力问题。在此过程中,我们将全球卫生中的伦理研究实践定位为一种在言语与非言语之间,或者更一般地说,在实施的规则与对人的具体关系理解之间的辩证运动。全球卫生研究伦理不应以被动遵守现有伦理行为准则为前提,而应以依赖与研究参与者互动并对其做出回应的触觉认知模式为前提。研究人员不应将重点放在通过形式和程序来实施伦理实践上,认识到实地工作中遇到的每个伦理困境都是独特的,且植根于社会背景、人际关系和个人经历,这一点至关重要。