Department of Physical Medicine and Rehabilitation, University of Michigan, Ann Arbor, MI.
Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, IL.
Arch Phys Med Rehabil. 2019 Apr;100(4S):S13-S21. doi: 10.1016/j.apmr.2018.05.033. Epub 2018 Aug 25.
To develop a new measure of caregiver strain for use in caregivers of individuals with traumatic brain injury (TBI), Traumatic Brain Injury Caregiver Quality of Life (TBI-CareQOL) Caregiver Strain.
Qualitative data, literature reviews, and cross-sectional survey study.
Three TBI Model Systems rehabilitation hospitals, an academic medical center, and a military medical treatment facility.
Caregivers (N=560) of civilians (n=344) or service members/veterans (SMVs) with TBI (n=216).
Not applicable.
TBI-CareQOL Caregiver Strain Item Bank.
Exploratory and confirmatory factor analyses, a graded response model (GRM) and differential item functioning supported the retention of 33 items in the final measure. GRM calibration data was used to inform the selection of a 6-item static short form, and to program the TBI-CareQOL Caregiver Strain computer-adaptive test (CAT). CAT simulation analyses indicated a 0.97 correlation between the CAT scores and the full item-bank. Three-week test-retest reliability was strong (r=0.83).
The new TBI-CareQOL Caregiver Strain CAT and corresponding 6-item short form were developed using established rigorous measurement development standards; this is the first self-reported measure developed to evaluate caregiver strain in caregivers of individuals with TBI.
开发一种新的创伤性脑损伤（TBI）照顾者压力衡量标准，即创伤性脑损伤照顾者生活质量（TBI-CareQOL）照顾者压力量表。
定性数据、文献回顾和横断面调查研究。
三个 TBI 模型系统康复医院、一个学术医疗中心和一个军事医疗设施。
TBI 平民（n=344）或军人/退伍军人（SMV）照顾者（n=216）的照顾者。
不适用。
TBI-CareQOL 照顾者压力量表项目库。
探索性和验证性因子分析、分级响应模型（GRM）和差异项目功能支持保留最终量表中的 33 个项目。GRM 校准数据用于告知选择 6 项静态简短形式，并为 TBI-CareQOL 照顾者压力计算机自适应测试（CAT）编程。CAT 模拟分析表明，CAT 分数与完整项目库之间的相关性为 0.97。3 周的重测信度较强（r=0.83）。
新的 TBI-CareQOL 照顾者压力 CAT 及其对应的 6 项简短形式是使用既定的严格测量开发标准开发的；这是第一个为评估 TBI 患者照顾者的压力而开发的自我报告衡量标准。
