Tonmukayakul Utsana, Shih Sophy T F, Bourke-Taylor Helen, Imms Christine, Reddihough Dinah, Cox Liz, Carter Rob
Deakin University, Geelong, Centre for Population Health Research, Locked Bag 20000, Geelong, Victoria, 3220, Australia.
Deakin University, Geelong, Centre for Population Health Research, Locked Bag 20000, Geelong, Victoria, 3220, Australia.
Res Dev Disabil. 2018 Sep;80:93-101. doi: 10.1016/j.ridd.2018.06.012. Epub 2018 Jun 28.
Cerebral palsy (CP) and its associated conditions can pose a significant economic burden on families, the health care system and the general economy. The boundary for inclusion of costs in research can vary substantially across studies.
To summarize the evidence for burden of disease for CP including the impacts on the health system, the community and carers.
Literature was identified from Ovid Medline, Embase, CINHAL, PsyInfo, Econlit, Health Economic Evaluation Database (HEED) and NHS Economic Evaluation Database (NHS EED) in the Cochrane Library. The search was restricted to articles published in English between 1970 and April 2016. All costs were converted to $USD 2016 price.
Twenty-two articles were included. Studies varied from snapshot cost descriptions to more complex lifetime estimates, from prevalence-based to incidence-based studies, and from inclusion to exclusion of non-medical costs. There was a strong positive relationship between CP severity and expenditure. Significant costs were incurred by families and the welfare system to facilitate school and community engagement.
Facilitating participation for people with CP involves substantial expense. The size, nature and distribution of the economic burden emphasises the importance of finding effective strategies to reduce the risk and severity of CP, together with how it is financed.
脑瘫及其相关病症会给家庭、医疗保健系统和整体经济带来巨大的经济负担。研究中纳入成本的界限在不同研究之间可能有很大差异。
总结脑瘫疾病负担的证据，包括对卫生系统、社区和照料者的影响。
从Cochrane图书馆的Ovid Medline、Embase、CINHAL、PsyInfo、Econlit、卫生经济评估数据库（HEED）和英国国家医疗服务体系经济评估数据库（NHS EED）中检索文献。检索限于1970年至2016年4月期间发表的英文文章。所有成本均换算为2016年美元价格。
纳入22篇文章。研究范围从简要的成本描述到更复杂的终生估计，从基于患病率的研究到基于发病率的研究，以及从纳入到排除非医疗成本。脑瘫严重程度与支出之间存在很强的正相关关系。家庭和福利系统为促进上学和社区参与产生了重大成本。
促进脑瘫患者的参与涉及大量费用。经济负担的规模、性质和分布强调了寻找有效策略以降低脑瘫风险和严重程度以及其资金筹集方式的重要性。
