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基于证据的脑瘫儿童早期康复:为康复专业人员共同制定多方面的知识转化策略

Evidence-based early rehabilitation for children with cerebral palsy: co-development of a multifaceted knowledge translation strategy for rehabilitation professionals.

作者信息

Hanson Jessica H, Majnemer Annette, Pietrangelo Filomena, Dickson Leigh, Shikako Keiko, Dahan-Oliel Noémi, Steven Emma, Iliopoulos Georgia, Ogourtsova Tatiana

机构信息

School of Physical and Occupational Therapy, Faculty of Medicine and Health Sciences, McGill University, Montreal, QC, Canada.

Montreal Children's Hospital, Research Institute of the McGill University Health Center, Montreal, QC, Canada.

出版信息

Front Rehabil Sci. 2024 Aug 7;5:1413240. doi: 10.3389/fresc.2024.1413240. eCollection 2024.

DOI:10.3389/fresc.2024.1413240
PMID:39169922
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11335716/
Abstract

BACKGROUND

Cerebral palsy (CP) is the most common childhood physical disability. Early and evidence-based rehabilitation is essential for improving functional outcomes in children with CP. However, rehabilitation professionals face barriers to adopting evidence-based practices (EBP)s. The objective of this project is to develop a knowledge translation (KT) strategy to support CP-EBP among pediatric rehabilitation professionals.

METHODS

We follow an integrated KT approach by collaborating with clinician- and patient-partners. Partners engaged in co-design through team meetings and content review via email. The KT strategy comprises two components: (1) An electronic (e)-KT toolkit was created from summarized evidence extracted from randomized clinical trials on early rehabilitation for children with CP, and (2) a multifaceted online KT training program developed with guidance from a scoping review exploring effective KT strategies.

RESULTS

The e-KT toolkit summarizes twenty-two early interventions for children with or at risk for CP aged 0-5 years. Each module features an introduction, resources, parent/family section, and clinician information, including outcomes, intervention effectiveness, and evidence level. The KT training program includes three 10-15 min video-based training modules, text summaries, quizzes, and case studies. Site champions, identified as qualified rehabilitation professionals, were onboarded to support the site implementation of the training program. A champion-training booklet and 1-hour session were designed to equip them with the necessary knowledge/resources.

CONCLUSION

The tailored, multifaceted, and co-designed KT strategy aims to be implemented in pediatric rehabilitation sites to support professional's uptake of CP-EBPs. Lessons learned from its development, including the co-development process and multifaceted nature, hold potential for broader applications in rehabilitation.

摘要

背景

脑性瘫痪(CP)是儿童期最常见的身体残疾。早期且基于证据的康复对于改善CP患儿的功能结局至关重要。然而,康复专业人员在采用基于证据的实践(EBP)方面面临障碍。本项目的目标是制定一项知识转化(KT)策略,以支持儿科康复专业人员采用CP-EBP。

方法

我们通过与临床医生和患者合作伙伴合作,采用综合KT方法。合作伙伴通过团队会议参与共同设计,并通过电子邮件进行内容审查。KT策略包括两个组成部分:(1)一个电子(e)-KT工具包,它是从关于CP患儿早期康复的随机临床试验中提取的总结证据创建的;(2)一个多方面的在线KT培训项目,该项目是在一项探索有效KT策略的范围综述的指导下开发的。

结果

e-KT工具包总结了针对0至5岁CP患儿或有CP风险患儿的22种早期干预措施。每个模块都有介绍、资源、家长/家庭部分以及临床医生信息,包括结局、干预效果和证据水平。KT培训项目包括三个10 - 15分钟的基于视频的培训模块、文本总结、测验和案例研究。被确定为合格康复专业人员的现场负责人参与进来,以支持培训项目在现场的实施。设计了一本负责人培训手册和一个1小时的课程,以使他们具备必要的知识/资源。

结论

量身定制、多方面且共同设计的KT策略旨在在儿科康复场所实施,以支持专业人员采用CP-EBP。从其开发过程中吸取的经验教训,包括共同开发过程和多方面性质,在康复领域具有更广泛应用的潜力。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/07b7/11335716/76304c797279/fresc-05-1413240-g003.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/07b7/11335716/10e183d6fb04/fresc-05-1413240-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/07b7/11335716/297c9e798470/fresc-05-1413240-g002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/07b7/11335716/76304c797279/fresc-05-1413240-g003.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/07b7/11335716/10e183d6fb04/fresc-05-1413240-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/07b7/11335716/297c9e798470/fresc-05-1413240-g002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/07b7/11335716/76304c797279/fresc-05-1413240-g003.jpg

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Lessons learned in measuring patient engagement in a Canada-wide childhood disability network.
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