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提高自闭症谱系障碍儿童参与度的照顾者策略

Caregiver Strategies to Enhance Participation in Children With Autism Spectrum Disorder.

作者信息

Schiavone Nicole, Szczepanik David, Koutras John, Pfeiffer Beth, Slugg Laura

机构信息

1 Temple University, Philadelphia, PA, USA.

出版信息

OTJR (Thorofare N J). 2018 Oct;38(4):235-244. doi: 10.1177/1539449218786713. Epub 2018 Jul 11.

Abstract

Participation is necessary for childhood development, however, children with disabilities participate in fewer activities than their nondisabled peers. This study identified strategies caregivers use to increase participation in home- and community-based activities for children with autism spectrum disorder. Survey responses of 44 caregivers were analyzed through open and axial coding to develop a central theme and five broad themes. Caregiver strategies which produce a participation outcome fell into five themes: (a) adapters/facilitators, (b) pragmatic considerations, (c) social reframing, (d) sensory adjustments, and (e) desperate measures. Nonproductive strategies were identified where the child did not participate in the activity. Adaptations/facilitators were more likely used in the home, whereas community-based strategies were more often pragmatic considerations. Nonproductive strategies occurred more frequently in the community. When evaluating a child's participation, occupational therapy (OT) practitioners should take into consideration the context of the activity to identify appropriate and helpful strategies.

摘要

参与对儿童发展至关重要,然而,残疾儿童参与的活动比其非残疾同龄人少。本研究确定了照顾者为增加自闭症谱系障碍儿童参与家庭和社区活动所采用的策略。通过开放式编码和轴心式编码对44名照顾者的调查回复进行了分析,以形成一个中心主题和五个宽泛主题。产生参与结果的照顾者策略分为五个主题:(a) 适应器/促进者,(b) 务实考虑,(c) 社会重构,(d) 感官调整,以及 (e) 孤注一掷的措施。在儿童未参与活动的情况下确定了无效策略。适应/促进措施在家庭中使用得更多,而基于社区的策略更多是务实考虑。无效策略在社区中出现得更频繁。在评估儿童的参与情况时,职业治疗 (OT) 从业者应考虑活动背景,以确定合适且有用的策略。

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